Dear Friends and Family,
I am running the 2019 Boston Marathon to raise funds for "Wake Up Narcolepsy” (WUN), a non-profit organization dedicated to providing support, advocacy, and funding for research on narcolepsy.
I'm honored to participate in WUN's 2019 Boston team. Not only am I an avid runner, completing two marathons already and running eight half marathons last year, in 2017 I was diagnosed with idiopathic hypersomnia (IH), a sleep disorder similar to narcolepsy.
Sleep disorders like IH and narcolepsy are currently incurable, frequently go undiagnosed, and cause lifelong symptoms, which are embarrassing at best and dangerous at worst. Narcolepsy and idiopathic hypersomnia are neurological disorders that are characterized by an inability to regulate sleep-wake cycles and cause excessive daytime sleepiness, sleep disruption, and, (for those with type I narcolepsy) cataplexy, which is a sudden and uncontrollable brief loss of muscle tone. The most common and frequently-recognized feature of people with narcolepsy and IH is falling asleep easily and uncontrollably. Owing to the rarity of these disorders, this falling asleep is frequently mistaken as laziness or "just not getting enough rest", when in fact the symptoms are neurological, not caused by lifestyle.
I'm asking for your support of Wake Up Narcolepsy to help raise awareness for sleep disorders and to support research efforts that can assist with better treatments or even a cure. I'm grateful for medications available to me that help manage the constant, unrelenting and often frustrating sleepiness that is inherent to IH, but these medications still have numerous side effects, tend to decrease in efficacy over time, and aren't even completely effective in preventing symptoms (ask me about my naps!) Furthermore, current treatments do not truly address the underlying causes of sleep disorders.
By donating to my campaign with Wake Up Narcolepsy's 2019 Boston Marathon team, you will help raise awareness of narcolepsy, assist those who have it, and fund additional research that may eventually reveal better treatments that improve patients' quality of life.
Thank you for your support!
Wake Up Narcolepsy (WUN) is raising funds for narcolepsy research to accelerate better treatments and ultimately find a cure. Narcolepsy is a lifelong sleep disorder that affects 3 million people worldwide. Without access to expert health care and medications, adults and children with narcolepsy often experience disabling symptoms which negatively impact their lives. Our runners in the Boston Marathon understand the potentially devastating effects of uncontrolled symptoms for people with narcolepsy and through this race advocate for all those affected by the condition. Please join them by donating today. Your contributions make all the difference!