Seth is turning 6 years old! We have been struggling to figure out what to do for Seth's birthday this year! Each passing year is bittersweet for us! While we are grateful for each year that we still have Seth here, the older he gets the more this disease, Sanfilippo Syndrome, takes from him.
Seth doesn't want anything for his birthday (except maybe bacon for breakfast and endless I-Pad battery time ?) we have decided to try to make this birthday really count!
We are going to try to raise $10,000 in 6 days leading up to Seth's 6th birthday! Seth has almost 2000 followers on his pages, if only 200 people gave $50 we would reach our goal! All the money raised will go to the Cure Sanfilippo Foundation and will help raise funds toward research to find a cure or treatment options for Sanfilippo, which hopefully Seth and the other kids will benefit from.
THANK YOU VERY MUCH FOR YOUR SUPPORT! #SethTurns6