BENEFITING: National Fragile X Foundation
EVENT DATE: Sep 21, 2013
Dianne Kixmiller wrote -
Charles, 11, and Oliver, 14 (“Chaliver”), inseparable brothers, are Dianne’s grandsons. They are both affected with Fragile X Syndrome (FXS), the only known genetic cause of Autism. They are happy, funny, & love regular school as well as family camping, canoeing, fishing, biking, and their dog, Willard. They are active Boy Scouts in Troop 2, founded by their uncle Teddy.
Oliver is in school track, loves cars, trains, planes, (anything that goes “fast”), legos, swimming, running, and “girls”.
Charles loves nature hiking, drawing, music, singing, dancing, creating videos, all sports (he has an amazing golf and baseball swing), miniature “characters”, Woody, and helping others.
"Chaliver" lives in Ozark, MO, with Mother and Dad, Heather & Craig Crosby. Their favorite place to go is “G’ma and G’pa’s house” in KC which is why we support LINKS of KCMO & OPKS.
We appreciate the support given to our family by family and friends. We thank you for joining the walk and/or donating to this fundraiser.
Please come and join us for our 3rd Annual Walk for the Faces of Fragile X!
Shawnee Mission Park 7900 Renner Road, Shawnee, KS Shelter No. 2
Registration begins at 9 am, Walk starting at 10 am followed by lunch, silent auction and more!
Activities include: live music and entertainment, a silent auction, a scavenger hunt for kids, a magician, face painting and more!
The funds raised will go to support the Kansas FX Group's year-long efforts which include scholarship programs, educational seminars and family social events.
Thank you for supporting our mission which is to unite families challenged with Fragile X, to enrich lives through emotional and educational support, promote public and professional awareness, and to advance research toward improved treatments and a cure for Fragile X.