BENEFITING: The Living Breath Foundation
ORGANIZER: THE IRONMAN FOUNDATION
EVENT: Your Journey Your Cause 2017
Welcome and thank you for taking the time out of your day to support the CR3 Project.
The purpose of the CR3 Project is to raise funds and awareness for Cystic Fibrosis so that people with Cystic Fibrosis are able to get the care they need to live a full and healthy life. The funds we earn this inaugural year (2017) will go to help The Living Breath Foundation.
Here is some back history of how this all came about.
The inspiration and the whole reason this project of ours came about was due to our nephew, Carlos Rodriguez III. He is the reason we are working to make this as big as possible. I believe that everyone has a moment or multiple moments in their life when they have an idea; a truly great idea or moment of “that’s what I could do”. Some people pass it up because of how busy life is, how hard it is to accomplish, or just lack of desire past the thought itself. We’ve all been there before; but this time we’re jumping in head first.
As you may have read already, from our blog, our nephew has Cystic Fibrosis (CF) and was diagnosed with Autism. Fortunately, he was diagnosed with CF at two weeks of age which meant he was able to receive all the care he needs from the earliest possible time. Most people don’t know much about CF. I myself knew basically nothing but I am learning about this genetic disorder or disease.
When I see our nephew running around playing with his sister and dog he looks like every other rambunctious little boy. But behind the scenes he goes through a gauntlet of therapy that would make most peoples’ head spin. He has nebulizer treatments daily to help thin the mucus in his airway so he can cough it out easier. He has a therapeutic percussion vest that he has to wear to help loosen thick, sticky mucus so it can be cleared from his lungs by coughing. He has food enzymes that he must take with pretty much every meal to help him absorb the nutrients easier. All of that multiple times a day…and that’s when he is “healthy” and not sick. Due to his CF, Carlos III is highly susceptible to developing colds and sickness that other kids his age would brush off in a day or two. If not treated it could literally send him down the pathway to detrimental damage to his respiratory system or death. So when he does get sick add more treatment and medications to an already over taxed body system. Don’t worry not all is dark and gloomy.
No matter how sick he is or how fussy he may get with having to deal with all this treatment. His little giggle and smile would turn grey skies to a clear blue, would thaw the harshest of winters to a full blooming spring. He doesn’t know any better. He is just a 3 year old boy living to the fullest he can; playing with toys, getting into mischief, exploring the world, and loving his parents.
So if he is able to go through life having to battle every day and deal with Cystic Fibrosis; the treatment, the harsh medication load, the common cold that lingers for 3-4 weeks, the stress that his parents have making sure he gets the care he needs. Then, yes we can deal with putting in work. To train for a Half-Ironman and full Ironman, an event that has intimidated me for over a decade. To step out of my shy comfort zone and ask for help. To go and connect with companies, network, and organize events to raise funds for Carlos Rodriguez III and The Living Breath Foundation.
A little boy that does not complain about what life has dealt him. He is pure, innocent and OUR INSPIRATION. He is the CR3 Project.