Skip to content
jonahsjustbegunfound's profile image - click for profile

JONAHS JUST BEGUN-FOUNDATION TO CURE SANFILIPPO IN's Fundraiser:

This Will Be Our Year-And We've Only Just Begun

JONAHS JUST BEGUN-FOUNDATION TO CURE SANFILIPPO IN's Photo
JONAHS JUST BEGUN-FOUNDATION TO CURE SANFILIPPO IN's Photo
JONAHS JUST BEGUN-FOUNDATION TO CURE SANFILIPPO IN's Photo
JONAHS JUST BEGUN-FOUNDATION TO CURE SANFILIPPO IN's Photo
JONAHS JUST BEGUN-FOUNDATION TO CURE SANFILIPPO IN's Photo
JONAHS JUST BEGUN-FOUNDATION TO CURE SANFILIPPO IN's Photo
JONAHS JUST BEGUN-FOUNDATION TO CURE SANFILIPPO IN's Photo
JONAHS JUST BEGUN-FOUNDATION TO CURE SANFILIPPO IN's Photo
JONAHS JUST BEGUN-FOUNDATION TO CURE SANFILIPPO IN's Photo
JONAHS JUST BEGUN-FOUNDATION TO CURE SANFILIPPO IN's Photo
JONAHS JUST BEGUN-FOUNDATION TO CURE SANFILIPPO IN's Photo
 

Can you help again in 2016?
November 15, 2016

Hey Guys: #GivingTuesday for JJB is coming up fast, Nevember 22nd. How do you feel about helping JJB raise some serious funds for our Gene Therapy  See more

THE STORY:

Jonah's Just Begun have been trailblazers for Sanfilippo Syndrome type C and D research. We have brought together families, scientists and clinicians. What most thought was a death sentence and a losing battle, now has hope. We have laid the groundwork for a treatment to come.  The clock is ticking for our children, the only thing that stands in our way now is funding.  As an ultra-rare disease, the task of funding falls on the families.  We have waited long enough.  Help us save our children.

Let this year be the year we make big things happen, this could be our year.

"This Will Be Our Year"

The warmth of your love's like the warmth of the sun,
And this will be our year, took a long time to come.
Don't let go of my hand now darkness is gone,
And this will be our year, took a long time to come.

And I Won't forget the way you helped me up when I was down.
And I won't forget the way you said, "Darlin' I love ya"
You gave me faith to go on - now we're there, and we only just begun.
This will be our year, took a long time to come.

The warmth of your smile, smile for me little one.
And this will be our year took a long time to come.
You don't have to worry, all your worry days are gone. 
This will be our year, took a long time to come.

And I won't forget the way you helped me up when I was down.
And I won't forget the way you said, "Darlin' I love ya"
You gave me faith to go on - now we're there and we only just begun.
This will be our year, took a long time to come.

Yeah we only just begun.
This will be our year......took a long time...to...come.

-Lyrics by Chris White

$58,331

MONEY RAISED
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  • Alicia McKibben

    $15

  • Leônidas

    $25

  • Alison Jedan

    $50

  • Susan

    $300

  • Graziela Goncalves Green

     

  • Silvio Linhares Filho

    $50

  • On behalf of Eugênio de B. Castelan Neto e família

    $42

  • Stephan

    $50

  • Maria Bernardete Castelan Póvoas

    $50

  • Dee Bruce

    $20

  • Celito Cordioli

     

  • Maira Queiroz

     

  • Anonymous

    $23

  • Biccas

    $100

  • Raphael Athanasio

    $250

  • Ana Vicente

    $125

  • Adriana Freitag Migott

    $10

  • Thomas Hoffman

    $1,000

  • Anonymous

    $50

  • Anonymous

     

  • Thiago and Ana Claudia Michelon

    $50

  • Athina&Gerasimos;

    $50

  • Anonymous

    $10

  • Clarissa, Marcelo e Gabriel

    $30

  • Anonymous

    $20

  • Luísa pires dos santos

    $100

  • Rodrigo

    $50

  • Anonymous

    $50

  • João e Camila

    $200

  • Anonymous

     

  • Heda Wenzel

     

  • Thalyne

     

  • Rodrigo, Anamaria, Bernardo e Felipe

    $100

  • Luciana e André

    $50

  • Eduardo e família

    $100

  • Anonymous

     

  • Augusto Castelan Carlson e Emanuela Kestering Vieira

    $50

  • Nara & Cia

    $70

  • Sônia Mascarello

    $100

  • Bia, André e Mateus

    $100

  • Livia Ferraro

    $50

  • Save Bernardo!

    $75

  • Fernanda Lonardoni

    $100

  • Anonymous

     

  • On behalf of Guisela G. S. Matheson and family

    $22

  • Laurie Caine

     

  • On behalf of Luciana Pons and family

    $56

  • On behalf of Cris e Alex

    $10

  • João Paulo

    $40

  • Anonymous Matching Donation

    $5,000

  • Ana Cristina, José Francisco e Igor

    $40

  • Anonymous

    $20

  • Tina e Calito

    $100

  • Oz e Marlete

    $20

  • Rafael Rosa

    $10

  • Beto e Leda

    $50

  • Débora e Cesar Meyer

    $25

  • Bruna Cavaignac Nardi

    $25

  • Antonio e Laura

    $50

  • Lui

    $15

  • friends at michael taylor

    $500

  • Anonymous

    $20

  • Daren e Walter

    $15

  • Elisete Zagheni

    $20

  • Sylvia Dantas

    $40

  • Andréia e Roberto

    $100

  • Rodrigo, Anamaria, Bernardo e Felipe

    $50

  • Anonymous

     

  • Flavio Lima de Souza

    $50

  • Anonymous

    $100

  • Anonymous

     

  • On behalf of Paulo Roberto Velloso

    $10

  • On behalf of Raquel May

    $21

  • J.Renata Rocco Cuzzi

    $50

  • Francois Lapalme

    $25

  • Gulnaz

    $100

  • Georgette Timmerman

    $100

  • BARBARA C. Frey

    $50

  • The Abbotts

    $166.30

  • Clarissa

    $25

  • On behalf of Giovani Pasetti

    $21

  • Daria-Maret Geller

    $12

  • Daria-Maret Geller

    $11

  • Flávio Engel Menezes

    $130

  • Barbara Cleaves Frey

    $50

  • Georgette Timmerman

    $100

  • Daria-Maret Geller

    $30

  • Laurie Caine

     

  • Daria-Maret Geller

    $50

  • Daria-Maret Geller

    $32

  • Daria-Maret Geller

    $45

  • Anonymous

    $10

  • Daria-Maret Geller

    $20

  • Daria-Maret Geller

    $50

  • Anonymous

    $25

  • Rodrigo Pereira

    $10

  • Yard sale and FB

    $695

  • E&G

    $34.15

  • The Charleys plus August

    $26.30

  • The Charleys

    $18

  •  
  •  
  •  
 

117% Raised of $50,000 Goal

The Team: $58,331 TOTAL RAISED SO FAR

Fundraiser Title

JONAHS JUST BEGUN-FOUNDATION TO CUR...

Amount Raised

$30,529

 

61% Raised of $50,000 Goal

Fundraiser Title

Rodrigo Carlson

Amount Raised

$14,246

Fundraiser Title

Jonny Lee Miller Fans Unite For Jon...

Amount Raised

$3,503

 

70% Raised of $5,000 Goal

Fundraiser Title

Joshua Weishaar

Amount Raised

$2,466

 

25% Raised of $10,000 Goal

Fundraiser Title

Faiz Rabbani

Amount Raised

$2,051

Fundraiser Title

Christi Ormeroid

Amount Raised

$1,150

 

115% Raised of $1,000 Goal

Fundraiser Title

hannah abbott

Amount Raised

$999

 

100% Raised of $1,000 Goal

Fundraiser Title

Wood Family

Amount Raised

$979

 

39% Raised of $2,500 Goal

Donor Comments

The Charleys

The Charleys

DONATION: $18

1 year ago

The Charleys plus August

The Charleys plus August

DONATION: $26.30

1 year ago

E&G

E&G

DONATION: $34.15

1 year ago

Yard sale and FB

Yard sale and FB

DONATION: $695

1 year ago

Rodrigo Pereira

Rodrigo Pereira

DONATION: $10

1 year ago

Anonymous

ANONYMOUS

DONATION: $25

1 year ago

Daria-Maret Geller

Daria-Maret Geller

DONATION: $50

Last 2 Weeks of Savebucks and Card Sales 2 years ago

Daria-Maret Geller

Daria-Maret Geller

DONATION: $20

Savebucks Week 5 2 years ago

Anonymous

ANONYMOUS

DONATION: $10

2 years ago

Daria-Maret Geller

Daria-Maret Geller

DONATION: $45

Eastermarket Hannover Ricklingen 2 years ago