Paiges Brain Surgery Bills
Organized by: Allie Guyant
In 2010 seven year old Paige was diagnosed with seizures. Not physical seizures but just ones that made her stare off into space and not know what is going on around her. She was given medication and preformed sleep studies but nothing was helping to stop the seizures. Then in 2015 after moving from Wisconsin to Florida she was finally diagnosed with Landau-Kleffner Syndrome, Also known as LKS. LKS is a very rare childhood disease. Along with this disease came a different form of seizures, her seizures were of her just hysterically laughing and unable to stop. A major feature of LKS is the gradual or sudden loss of the ability to understand and use spoken language. Children with LKS have abnormal electrical brain waves that can be documented by an EEG. After getting an EEG of Paiges brain the doctors noticed that her brain is never "turning off." Which means when she is sleeping, her brain is still constantly going so she really isn't getting any rest. Thus, she is always tired. Since oral medication has not helped with the seizures the only other option is brain surgery. This will be done in Miami. Miami is over 9 hours from our home! After this surgery Paige will more than likely no longer be able to use the spoken language but she should be able to communicate through reading and writing and sign language, which she will have to learn after surgery. This will be a long and twisty road but we are determined to do everything we can to get the best help for her. We are hoping to raise money to help pay for medical bills and gas money to get to the hospital in Miami and other various appointments. Every penny counts so it doesnt matter how small the donation. Thank You Very Much!