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Patient to Patient Experience Symposium

Organized by: Susan Nyanzi

Susan's Photo
Susan's Photo
Susan's Photo
 

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EVENT DATE Nov 18, 2016

THE STORY:

Palm Trees and Pill Boxes!

We continue to hear a cure is on its way and it seems progress is being made, however in the meantime, “we” the patients want to focus on living well now! The mission of the Patient to Patient Experience Symposium is to empower and educate those living with a chronic condition to better manage their health and well-being by giving them evidence-based integrative approaches.

The Patient to Patient Experience Symposium will empower, change attitudes and behaviors of patients, providers and public health professionals on the application and integration of evidence-based integrative approaches in management of rare autoimmune conditions. We hope patients, providers and public health professionals will then become social agents of change and empower others on the benefits of an integrative approach. 

This symposium is unique in that it’s organized by Patients for Patients and their providers. This will be done using a public health framework that posits prevention about protecting health, preventing things from getting worse and promoting positive health habits. Heath education, behavior change theories and models will be used as well as the implementation of adult learning strategies to ensure everyone’s knowledge-base is increased. 

Both the patient and provider tracks will consist of 90-minute interactive sessions on Friday, Saturday and half day Sunday. The topic discussed for both sessions will be derived from what the research shows as the most troublesome in Rheumatic autoimmune conditions. The dissemination methods will however differ, for the patient’s session, panels and interactive sessions led by patients will be used. The provider section will consist of educational sessions lead by leaders in specialized fields. Continuing Education Units will additionally be provided. 

The PTPES Planning Committee consists of working professional Scleroderma patients, we have a social worker, trained counselor, public health practitioners, nurses, physicians, public health researchers a pharmacist and of course patient advocates. 

Patients and providers will be recruited from both national Scleroderma Non-profit organizations, other autoimmune related foundations, professional organizations and the committee’s contact lists. Email blasts, personal invitation and social media will additionally be used. We are targeting 200 – 300 attendees with at least two-thirds or more of those being providers.

As we wait on a cure, let’s focus on those currently living and show them how they can better manage their condition. To help create such an environment, partnerships across disciplines (medicine, public health, integrative management, advocacy), at the local and national level are key to sustainable networks. 

Your Donation Will Go A Long Way!  Please Help!

Learn More About PTPES 
www.patienttopatientexperiencesymposium.com

Have any questions or answers contact us at info@ptpes.com
or call (909) 896-6957.

 

$1,270

 

1% Raised of $250,000 Goal

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  • Susan N

    $100

  • Dr. Kagwa

    $100

  • Monica Maglasang and Larry Fitch

    $25

  • Dorothy Kitaka

    $25

  • Anthony Fabiano

    $25

  • Bonnie Finn

    $100

  • Conneta Johnson

    $25

  • Anonymous

    $25

  • Dan and Elaine Furst

    $100

  • Gina

    $25

  • Andrea

     

  • MARK BECK

    $25

  • Karen Baker

    $10

  • Lou Hubaud

    $100

  • Russ and Jeanne Millspaugh

    $100

  • Helene Golston

    $25

  • Elaine Leu

    $100

  • Norm & Jennifer Smith

    $200

  • Helene Golston

    $25

  • Anonymous

     

  • Rev D

     

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Organized by

Susan Nyanzi

This is a direct to organizer fundraiser.

Fundraise for this Campaign

The Team: $1,270 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Susan Nyanzi

Amount Raised

$710

 

0% Raised of $250,000 Goal

Fundraiser Title

Constance Evans-Hubaud

Amount Raised

$500

Fundraiser Title

Karen Baker

Amount Raised

$35

Fundraiser Title

Cindi Brannum

Amount Raised

$25

 

0% Raised of $10,000 Goal

Donor Comments

Rev D

Rev D

More power to you Dr Sue 2 years ago

Anonymous

ANONYMOUS

Sounds great. Hope it works out well. Sorry for my delay in answering. Ed Krick 2 years ago

Helene Golston

Helene Golston

DONATION: $25

Let's find a cure. 2 years ago

Norm & Jennifer Smith

Norm & Jennifer Smith

DONATION: $200

2 years ago

Elaine Leu

Elaine Leu

DONATION: $100

2 years ago

Helene Golston

Helene Golston

DONATION: $25

2 years ago

Russ and Jeanne Millspaugh

Russ and Jeanne Millspaugh

DONATION: $100

2 years ago

Lou Hubaud

Lou Hubaud

DONATION: $100

Tribute to my wife! 2 years ago

Karen Baker

Karen Baker

DONATION: $10

2 years ago

MARK BECK

MARK BECK

DONATION: $25

2 years ago

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