Patient to Patient Experience Symposium
Organized by: Susan Nyanzi
Petition the FDA - don't blindfold me and my doctor
August 03, 2016
EVENT DATE Nov 18, 2016
Palm Trees and Pill Boxes!
We continue to hear a cure is on its way and it seems progress is being made, however in the meantime, “we” the patients want to focus on living well now! The mission of the Patient to Patient Experience Symposium is to empower and educate those living with a chronic condition to better manage their health and well-being by giving them evidence-based integrative approaches.
The Patient to Patient Experience Symposium will empower, change attitudes and behaviors of patients, providers and public health professionals on the application and integration of evidence-based integrative approaches in management of rare autoimmune conditions. We hope patients, providers and public health professionals will then become social agents of change and empower others on the benefits of an integrative approach.
This symposium is unique in that it’s organized by Patients for Patients and their providers. This will be done using a public health framework that posits prevention about protecting health, preventing things from getting worse and promoting positive health habits. Heath education, behavior change theories and models will be used as well as the implementation of adult learning strategies to ensure everyone’s knowledge-base is increased.
Both the patient and provider tracks will consist of 90-minute interactive sessions on Friday, Saturday and half day Sunday. The topic discussed for both sessions will be derived from what the research shows as the most troublesome in Rheumatic autoimmune conditions. The dissemination methods will however differ, for the patient’s session, panels and interactive sessions led by patients will be used. The provider section will consist of educational sessions lead by leaders in specialized fields. Continuing Education Units will additionally be provided.
The PTPES Planning Committee consists of working professional Scleroderma patients, we have a social worker, trained counselor, public health practitioners, nurses, physicians, public health researchers a pharmacist and of course patient advocates.
Patients and providers will be recruited from both national Scleroderma Non-profit organizations, other autoimmune related foundations, professional organizations and the committee’s contact lists. Email blasts, personal invitation and social media will additionally be used. We are targeting 200 – 300 attendees with at least two-thirds or more of those being providers.
As we wait on a cure, let’s focus on those currently living and show them how they can better manage their condition. To help create such an environment, partnerships across disciplines (medicine, public health, integrative management, advocacy), at the local and national level are key to sustainable networks.
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Learn More About PTPES
Have any questions or answers contact us at email@example.com
or call (909) 896-6957.