I was drawn into CrowdRise when my husband shared a fundraiser for the Kawasaki Disease Foundation. When my daughter was 18 months old, she was diagnosed with Atypical Kawasaki Disease. She had a fever that persisted despite several rounds of high dose injectible antibiotics. Next up was blood tests. Have you ever held a toddler down while 4 huge vials of blood were drawn from her tiny arm? I have and I never want to relive it. The tests showed high white blood cell count, high sed rate, high platelet count - all of which are typical in Kawasaki patients. But, she only had one of the other symptoms, swollen lymph nodes. Her tongue did not look like a strawberry, her eyes were were not blood shot and she did not have peeling skin or rash. She was admitted to the hospital on her 8th day 103+ degree fevers. The doctors diagnosed her with Atypical Kawasaki Disease, though there was disagreement about the diagnosis since she lacked so many symptoms. She was given IVIG treatment on the 9th day of fever and responded well to it. She was without a fever for the first time in 10 days.
As a parent in this situation, it is heartwrenching to watch your child suffer and be unable to help her. The number of tests that our little girl underwent while they were trying to diagnose her is staggering. She had multiple chest xrays, multiple blood draws, strep tests, catheterization to collect urine for a urinalysis, and a CT scan. I, like Sarah Chalke, just wanted answers and each time the doctors suggested a possible ailment the tests came back negative. The path to a Kawasaki Diagnosis (particularly with Atypical Kawasaki) is a process of elimination. Your child's pediatrician tests for anything and everything it can be, and if it is not that, than it is presumed to be Kawasaki's and treatment is given. It would be such an amazing gift for parents and children to have a diagnostic test for this mysterious ailment. Please support this amazing opportunity to fund research and have your donation matched. My daughter and I will personally thank you.
Now that I've plead my cause, I'll give you a quick bio. I am a stay-at-home mom to two lovely little girls, author of a blog, www.thedogoodermama.com, and a firm believer in the power of individuals to create change. One of my favorite quotes is Mahatma Ghandi's "Be the change that you wish to see in the world." We can't just sit back and wait for change to happen. We must seize each day and do what we can with the resources we have to create it.
CR Impact Points
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CR Impact Points
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