May 15, 2016
You all have been doing a great job! If we raise $50k by the end of May, we will raffle off a trip to see Dr. Miller up to $1,000. For every See more
BENEFITING: MAC PACT INC
Thank you for visiting our fundraiser page! You are probably here because you either have a child with Prader-Willi Syndrome (PWS) or know someone with PWS. We have very exciting news in our PWS community. Phase 2 for a very promising drug called Oxytocin will be starting shortly!!! Let us give you some background. PWS is a rare genetic disorder affecting low muscle tone, feeding difficulties, temperature instability, developmental delays, cognitive delays and much more. However, the hallmark of PWS is that you NEVER FEEL FULL. Imagine feeling hungry every single day, every single minute. Our community has made huge strides in the last decade and now it is time for the next big thing. Phase 1 results from the Oxytocin Initiative were simply amazing. Kids showed a decrease in anxiety, increase in social skills and most importantly, decrease in hunger. This is a milestone in our PWS community.