BENEFITING: Solve ME/CFS Initiative
UPDATE: Since my diagnosis of Chronic Fatigue Syndrome in August 2015, I have had more in-depth diagnostic work done and have found other causes to explain my symptoms (narcolepsy, psoriatic arthritis, dysautonomia and premature ovarian failure). My condition has improved enormously since undergoing various treatments, and I am now able to exercise small amounts, attend some social events and go to university part time- I've gotten some important parts of my life back. However, this is not the case for most ME/CFS sufferers - without sufficient research into CFS, patients are left without treatment and without hope. Please donate in the hope that their quality of life will someday be improved in the same way that mine has. My headshave will go along as planned!
In 2016, I’ll be shaving off all my beautiful hair to raise money for ME/CFS research, a cause that means a lot to me. It would mean the world to me if you gave to this cause. Funding for ME/CFS research is desperately needed, so that a cure or treatment can be found to improve the quality of life of those who suffer from the condition.
Much love xx
Read below for further information about ME/CFS.
Myalgic Encephalomyelitis (a.k.a. Chronic Fatigue Syndrome or Systemic Exertion Intolerance Disease) is a little known, complex and debilitating illness with a serious impact on quality of life. It often begins suddenly, with flu-like symptoms that do not resolve or improve.
Although symptoms differ between sufferers, the main symptoms of the illness are fatigue, pain (headaches and/or muscle/joint pain), unrefreshing sleep and Post-Exertional Malaise (PEM). PEM is an exacerbation of symptoms following mental or physical exertion, which may include fatigue, headaches, aches and pains, concentration difficulties, sore throat, sinus/nasal problems, abdominal pains, and sensitivity to temperature or light.
ME/CFS is not widely known or understood by the general public or even medical professionals. Doctors that understand the condition are few and far between. This fundraiser is also partly to raise awareness for the disease and increase understanding of this “invisible illness”.
Many do recover eventually from the illness, but in most cases, recovery takes years. Others suffer with ME/CFS for the rest of their lives. There is no cure, no one treatment or medication widely-agreed upon or used by medical professionals. Research into the cause, diagnosis and treatment of ME/CFS is severely underfunded. As such, hope for a treatment or cure for the disease anytime soon is quite low.
All money from this fundraiser goes directly towards the Solve ME/CFS Initiative, a large organisation based in the United States funding research to cure ME/CFS. You can read more about the organisation as well as ME/CFS at their website, http://www.solvecfs.org .
Thank you so much for reading this and, if you do decide to donate, thank you so much. It means the world to me that you are helping to fund research that could dramatically improve peoples lives. Even small amounts help.