Skip to content
fxfop's profile image - click for profile

Fragile X Families of Phoenix's Fundraiser:

Fragile X Families of Phoenix Let 'Em Know

Fragile X Families of Phoenix's Photo
Fragile X Families of Phoenix's Photo
Fragile X Families of Phoenix

THE STORY:

Fragile X Families of Phoenix is proud to support the National Fragile X Foundation’s “Let ‘Em Know 5K” event with the creation of our own fundraising team! We hope you will join us to raise awareness and money for Fragile X!

Ways you can get involved:
1. Join our team!  Click the “Join our team” option and help us reach our fundraising goal!

2. Create a team as part of our Fragile X Familes of Phoenix!  Help us reach more people and raise more awareness by being a part of our team!  We’d love to see a team created in the honor of someone you love with Fragile X as part of our efforts!

3. Donate!  We can’t meet our goals without your donations!  $5, $15, $25, $100 – any amount, it all makes a huge difference and puts us closer to meeting our fundraising goal!

4. Register to participate in the virtual event!  For your $25 registration fee (byJune 11) you will receive your official Let ‘Em Know Dri-fit race shirt and race bib!  (Please note, registration is separate from the donation.)

5. Spread the word!!  Share our post with your family and friends through email, Facebook, Twitter and other social media outlets!

What is Fragile X?
Fragile X is a family of fragile x associated disorders:

Fragile X syndrome (FXS) — The most common cause of inherited intellectual disability and the most common known genetic cause of autism. Individuals with FXS can experience developmental delays ranging from mild to severe.

Fragile X-associated tremor/ataxia syndrome (FXTAS) — An adult onset (over 50) neurological disorder causing tremors and changes to balance, memory, mood and intellect.

Fragile X-associated primary ovarian insufficiency (FXPOI) — A condition that causes irregular menstrual cycles, infertility and premature menopause in females of reproductive age.

Fragile X-associated Disorders can be passed on by carriers of the FMR1 gene mutation who have no apparent signs of an FXD. In some families a number of individuals may be affected, while in other families a diagnosed individual may be the only known family member to exhibit symptoms. Also, in some families, only carriers are identified and there are no apparently affected family members.

What is a Virtual 5K?
Basically, it means you can complete it anywhere, anytime beginning July 1 and ending on July 31, 2014. You can run or walk the 3.1 miles (5K) all at once, over the course of a week or the entire month. This is on the honor system—you do not have to report or verify your miles!

  
Where can you learn more?
From the National Fragile X Foundation’s Website!  www.fragilex.org 


We hope you will join us and support our team!

 

$2,285

MONEY RAISED
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  • Reading Room

    $30

  • Dreaming Summit Staff

    $41

  • Rogan Rianna

    $10

  • April Poulin Dreaming Summit Elementary

    $30

  • Amy Moccardini

    $100

  • Lynn Kaser

    $50

  • Anonymous

    $50

  • Dennis & Kathy Nuesse

    $100

  • Proudfoot

    $89

  • Dreaming Summit Staff Day #2

    $55

  • John Kay

    $25

  • Lawn and Patricia Griffiths

    $50

  • Lawn and Patricia Griffiths

    $25

  • Cheryl Thayer

    $20

  • Betty Wilson

    $25

  • Tony & Shelli Brighi

    $200

  • Sarah Friesth

    $65

  • Angie & Bryan Sullivan

    $50

  • Jean Lemberg

    $50

  • Kurt and Jenifer Johnson

    $50

  • Reade McClintock

    $25

  • Jane Slovenske

    $25

  • Bob and Trena Mar

    $100

  • Jen Bailey

    $25

  • Rochelle Cotela

    $20

  • Jill Patchin

    $25

  • Jane Williamson

    $25

  • Parker's

     

  • Jolinn Lara-Price

    $20

  • Colleen Gentry

    $20

  • Kristin Smith

    $20

  • Laura Haller

    $50

  • Janice Levenson

    $25

  • Denise Tobin

     

  • Tara & Mike Montoya

    $25

  • Laura Angell

    $25

  • Shellie Walker

    $25

  • Jim Walker

    $25

  • Lisa Reisner

    $20

  • The Rial Family

    $30

  • Johnson's

    $25

  • The Rignall Family

    $55

  • Gail and Don Gentry

    $25

  • Patty McDonald

    $25

  • Tiffany Sorenson

    $25

  • Mary Maly

    $20

  • Karen Eveland

    $25

  • Tiffany Davies

    $20

  • Merrie Busch

    $20

  • Leah Derewicz

    $25

  • Tim and Sara OLeary

    $25

  • Heather Macey

    $20

  • Sylvia Rios

    $25

  • Anna & Chris Morrow

    $50

  • Riley Snickles

    $25

  • alpa

     

  • Sarah Plitt

    $25

  • Dominique McCormack

    $30

  • Kayleen

    $25

  • Aaron Andrews

    $50

  •  
  •  
  •  
 

38% Raised of $6,000 Goal

Fundraise for this Campaign

The Team: $2,285 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Sarah Friesth

Amount Raised

$1,585

Fundraiser Title

Nathan Nuesse

Amount Raised

$289

Fundraiser Title

Fragile X Families of Phoenix

Amount Raised

$266

 

4% Raised of $6,000 Goal

Fundraiser Title

Lawn and Patricia Griffiths

Amount Raised

$120

Fundraiser Title

Kristin Sukhu

Amount Raised

$25

Fundraiser Title

Le Na

Amount Raised

$0

Fundraiser Title

Colleen Gentry

Amount Raised

$0

Donor Comments

Aaron Andrews

Aaron Andrews

DONATION: $50

Go Team Friesth! 3 years ago

Kayleen

Kayleen

DONATION: $25

3 years ago

Dominique McCormack

Dominique McCormack

DONATION: $30

3 years ago

Sarah Plitt

Sarah Plitt

DONATION: $25

3 years ago

alpa

alpa

love to tate friesth 3 years ago

Riley Snickles

Riley Snickles

DONATION: $25

3 years ago

Anna & Chris Morrow

Anna & Chris Morrow

DONATION: $50

3 years ago

Sylvia Rios

Sylvia Rios

DONATION: $25

3 years ago

Heather Macey

Heather Macey

DONATION: $20

Unfortunately, I won't be able to attend the walk/run, but wanted offer a small token of support to your family,Trek and the Fragile X Foundation. You and Doug are simply wonderful parents raising a couple of beautiful and amazing boys. Much love to your family! 3 years ago

Tim and Sara OLeary

Tim and Sara OLeary

DONATION: $25

3 years ago