Eva Fini is a friend of mine with Rett syndrome. Rett Syndrome is the most physically disabling of the autism spectrum disorders. Primarily affecting little girls, it usually strikes by 18 months of age, and leaves its victims severely disabled. Most children with Rett are unable to talk, walk or use their hands. Extreme anxiety, Parkinson-like tremors, intractable seizures and orthopedic problems are common. Many children live to adulthood, requiring total, 24-hour-a-day care. Recently the symptoms of Rett Syndrome have been reversed in pre-clinical models. This achievement has established a new paradigm for 21st century medicine and the treatment of Rett Syndrome.
Launched in the wake of this dramatic and unexpected result, the Rett Syndrome Research Trust has a single focus – to make Rett Syndrome the first reversible brain disorder.
I am running in the Hambletonian Marathon relay for Eva Fini, to raise money and awareness for Rett syndrome research. I am not a runner, or should I say, I was not a runner. I have been training since march when I committed myself to the 9.8 miles portion of the relay to raise awareness for Rett. The money you donate goes directly to helping girls like Eva with Rett syndrome, in hopes of reversing this horrible disorder for my sweet little friend Eva. Please help me help all Rett girls by donating to this great cause!
With sincere thanks and gratitude,