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Alissa Pirraglia's Fundraiser:

Pink Mamma's

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BENEFITING: Rett Syndrome Research Trust

EVENT: TEAM EVA

EVENT DATE: Oct 20, 2013

Alissa Pirraglia

THE STORY:

Hi,
Eva Fini is a friend of mine with Rett syndrome. Rett Syndrome is the most physically disabling of the autism spectrum disorders. Primarily affecting little girls, it usually strikes by 18 months of age, and leaves its victims severely disabled. Most children with Rett are unable to talk, walk or use their hands. Extreme anxiety, Parkinson-like tremors, intractable seizures and orthopedic problems are common. Many children live to adulthood, requiring total, 24-hour-a-day care. 

Recently the symptoms of Rett Syndrome have been reversed in pre-clinical models. This achievement has established a new paradigm for 21st century medicine and the treatment of Rett Syndrome. 

Launched in the wake of this dramatic and unexpected result, the Rett Syndrome Research Trust has a single focus – to make Rett Syndrome the first reversible brain disorder.

I am running in the Hambletonian Marathon relay for Eva Fini, to raise money and awareness for Rett syndrome research. I am not a runner, or should I say, I was not a runner. I have been training since march when I committed myself to the 9.8 miles portion of the relay to raise awareness for Rett. The money you donate goes directly to helping girls like Eva with Rett syndrome, in hopes of reversing this horrible disorder for my sweet little friend Eva. Please help me help all Rett girls by donating to this great cause!

With sincere thanks and gratitude,
Alissa

$2,500

MONEY RAISED
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  • Kathy Cortez

    $50

  • Anonymous

     

  • Beatrice Sustack

    $25

  • Mabie family

    $20

  • Irene Johnson

    $20

  • The Keneally's

    $25

  • Max Neal

    $25

  • Michael Giannetto

    $20

  • John Maraldo

    $50

  • Paula Sidor

    $25

  • Kehoe family

    $50

  • Kathleen Baumann Schnoor

    $25

  • Catherine

    $250

  • Heather

    $50

  • The Marks Family

    $25

  • Irvin Peralta

    $50

  • THE PIRRAGLIA FAMILY

    $100

  • Jennifer Mellana-Rosenblatt

    $50

  • The McDonald Family

    $100

  • The Cerini Family

    $50

  • The Trapp Family

    $200

  • The Whitney Family

    $25

  • The Whitney Family

    $25

  • David Allan

    $25

  • Jeanine Holland

    $25

  • Williams Family

    $25

  • The Rundles

    $50

  • Hoffman's

    $25

  • Joanne Arena

    $25

  • Tina Esposito

    $25

  • Tina Esposito

    $25

  • Tina Esposito

    $25

  • Shawna

    $20

  • Kim and Eric

    $25

  • Logan,Katrina and Drew Gilbert

    $25

  • Celeste & Bill Gilbert

    $50

  • Megan Driscoll

    $50

  • Rondell & Norm Peters

    $25

  • Kimberly Ottinger

    $25

  • Phil and Susan

    $25

  • Pam Kugelman-Ryan

    $25

  • Chris & Kim Kyrou

    $100

  • Dylan and Reagan Brady

    $25

  • The Salte Family

    $25

  • Pagliocca Family

    $25

  • The Musson Family

    $200

  • The Connell Family

    $25

  • Deborah Cassidy

    $50

  • Deborah Cassidy

    $50

  • The Hludzinski Family

    $25

  • Mary & Bob McDonald / The Orzell Family

    $75

  • Ann Falkenberry

    $25

  • The Partoyan Family

    $75

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250% Raised of $1,000 Goal

The Team: $2,500 TOTAL RAISED SO FAR

Fundraiser Title

Alissa Pirraglia

Amount Raised

$1,000

 

100% Raised of $1,000 Goal

Fundraiser Title

jennifer Allan

Amount Raised

$800

 

100% Raised of $800 Goal

Fundraiser Title

Jennifer Galarneau

Amount Raised

$700

Donor Comments

The Partoyan Family

The Partoyan Family

DONATION: $75

Sorry to be late with this. We appreciate your efforts and hope our little contribution is helpful. Be well and thanks for bringing this to our attention! 3 years ago

Ann Falkenberry

Ann Falkenberry

DONATION: $25

3 years ago

Mary & Bob McDonald / The Orzell Family

Mary & Bob McDonald / The Orzell Family

DONATION: $75

To my favorite runner, you are awesome! 3 years ago

The Hludzinski Family

The Hludzinski Family

DONATION: $25

3 years ago

Deborah Cassidy

Deborah Cassidy

DONATION: $50

3 years ago

Deborah Cassidy

Deborah Cassidy

DONATION: $50

3 years ago

The Connell Family

The Connell Family

DONATION: $25

3 years ago

The Musson Family

The Musson Family

DONATION: $200

Run Titi!! Faster, Quick to the finish, find a cure! 3 years ago

Pagliocca Family

Pagliocca Family

DONATION: $25

3 years ago

The Salte Family

The Salte Family

DONATION: $25

3 years ago