EVENT DATE: Feb 22, 2014
My daughters and I have rare disease that will take our lives. I was told April 2013, that I have 6 years to live. could you just image being told that?
The disease is Common Variable Immune Difficiency (CVID) which affects our immune system response to fight infection and may result in a battle against leukemia a death sentence of 3-5 years.
My mission is to raise money for blood treatment cost and and make a demand to further research on this rare disease. That is taking my life right before my eyes.
As a team we will join February 22, 2014 in St John USVI for the 8.3 Tuff Mile Run for my Anniversary of my LIFE!
Stand, walk or run with me in St. John 8.3 Tough Mile Run February 22, 2014 for my one year anniversary with CVID
Looking For Team members to raise a
Minimum Fundraising Commitment of 5,000
As members of Team you will receive:
Team shirts~ sneakers
Runners are encouraged to book rooms as soon as possible and Race entry registration at http://8tuffmiles.com/
Suggestion if staying off of St. John as the island fills quickly:
Sugar Bay in St. Thomas resort at http://www.sugarbayresortandspa.com/ a 20 minute ferry to St. John
I can't stand alone in my fight will you stand, walk, or run beside me?