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Team Tea's Fundraiser:

Pitolisant Initative

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BENEFITING: MAC PACT INC

Team Tea

THE STORY:

Pitolisant has been approved in Europe for the treatment of narcolepsy and cataplexy. We believe that it has the potential to be extremely beneficial for individuals with Prader-Willi Syndrome. Unlike other promising drugs in phase II and phase III trials, it has been approved in Europe and will be available this fall. We have a two-step plan to accelerate the connection between pitolisant and PWS.

1) Systematically gather data on the clinical experience of individuals with PWS who have taken pitolisant. To that end, we have a handful of families currently gathering baseline data in advance of traveling to Europe to receive pitolisant.

2) Hire a Chief Medical Officer who will work tirelessly to provide access to this drug in the United States as soon as possible.

We need $100,000 to accomplish these things.

If you would like to make an offline donation, checks may be sent directly to the Chion Foundation:

Chion Foundation
c/o Lara Pullen
745 S. East Ave.
Oak Park, IL 60304

The Chion Foundation is a nonprofit, tax-exempt charitable organization under Section 501(c)(3) of the Internal Revenue Code. Donations are tax-deductible as allowed by law (Tax ID 81-1167193).

For more information about The Chion Foundation and the Pitolisant Program visit www.chionfoundation.org.

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To This Fundraiser

$40,328

MONEY RAISED
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  • Anonymous

     

  • Caroline

     

  • Sara C de Baca

    $100

  • Rebecca Foley

     

  • Renee and Francis Cuddy

    $40

  • Larson Family

    $25

  • Rothholz family

     

  • Anonymous

    $10,000

  • Carol Short

    $1,000

  • Christina King

     

  • David and Camille Weir

    $100

  • Melilla Knepler-Pearl

     

  • Anonymous

    $4,000

  • Terryl Decker

    $150

  • James Palladino

    $25

  • Jamboree for Téa Marie

    $535

  • Jamboree for Téa Marie

    $590

  • Grandma and Grandpa

    $150

  • Jamboree for Téa Marie

    $400

  • Aunt Robin and Uncle David

    $50

  • Amy Bayley

    $50

  • Amy Bayley

    $150

  • Shaulov Family

    $20,000

  • Jamboree for Téa Marie

    $2,400

  • Sawyer B.

    $102.64

  • Mary

    $100

  • Missy Devillez

    $100

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40% Raised of $100,000 Goal

Fundraise for this Campaign

The Team: $40,328 TOTAL RAISED SO FAR

JOIN THE TEAM

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Donor Comments

Missy Devillez

Missy Devillez

DONATION: $100

Lucas Johnson 4 months ago

Mary

Mary

DONATION: $100

for Kian and his friends! 4 months ago

Sawyer B.

Sawyer B.

DONATION: $102.64

For Olivia 8 months ago

Jamboree for Téa Marie

Jamboree for Téa Marie

DONATION: $2,400

1 year ago

Shaulov Family

Shaulov Family

DONATION: $20,000

1 year ago

Amy Bayley

Amy Bayley

DONATION: $150

1 year ago

Amy Bayley

Amy Bayley

DONATION: $50

2 years ago

Grandma and Grandpa

Grandma and Grandpa

DONATION: $150

2 years ago

Aunt Robin and Uncle David

Aunt Robin and Uncle David

DONATION: $50

2 years ago

Jamboree for Téa Marie

Jamboree for Téa Marie

DONATION: $400

2 years ago