Please rescue my daughter's life
Organized by: Lanka Thalassaemia Circle
(1) Baby Suwini Umedha Shreemali’s sadness story Suwini Umedha Shreemali Balasooriya, When she was at the age of 02 months, She was diagnosed with Thalassaemia major a potential life- threatening illness. Thalassaemia major causes large number of red blood cells to be destroyed, leading to diabetes, spleen, liver and heart problems. Due to her position, every 20 days, Suwini must undergo a complete blood transfusion. In addition, every nights, She must endure a painful injection by connecting around her navel for 10 hours as part of her treatment. After removing this machine, medicine connected area is swelled and injured. This terrible treatment must be done during her life end. These measures only stave off advancement of the disease and offer no longer term solution yet. (2) I’m Jayantha Balasooriya who is father of Suwini Umedha. When I got to know this sad news, I was badly helpless. So ,My words are poor to express that tale. I tried to seek how to cure her completely. I got to know Dr. Kalinga from Kandy was interesting Thalassaemia and he gave a concept to be cured children completely from thalassaemia. So,We formed a society by collecting with island wide thalassaemic patient and their parents. I lead this as a secretary of Lanka Thalassaemia Circle. Now I’m serving it for 4 years. Now we got many victories by curing thalassaemic children from privet sector. So far, The government sector does not answer for this illness. That is the grave problem faced poor patients. Whom should be taken responsibility for these lives. What do you think? (3) My loving daughter Suwini is an intelligent girl and realizes directions her future could go if her condition goes untreated. She always asks “can you cure me completely? When the connecting infusion pump is stopped. It is very painful for me. Will I die of you? ” At these times, I am helpless. So I can’t tell about my situation. In Some occasions, Suwini explains about her disease with her nursery friends “Last night, my mother connected me an infusion machine. Now my stomach is more pain this area by showing her stomach.” When near coming her blood transfusion, She shows us tiredness of her body. She refuses going somewhere and tries to sleep whole the day. My daughter Suwini is courageous and despites her difficult situations continue to smile remain positive. (4)Fortunately, there is a solution for us. It is called Bone Marrow Transplant. Suwini has already a 100% compatible donor in India. Now I can cure her by getting that donor’s bone marrow (stem cell) with your noble support. If you do not give me your support I cannot give her long life. That is the really truth. After that, She can afford the life saving operation and live out her dream of becoming master teacher of medical field. Because, She wants to wipe out thalassaemia From Sri Lanka. Won’t you help to succeed this baby Suwini’s dream?