Alexis Karlberg wrote -
October is Dysautonomia awareness month!!
Who would of known that a year ago the life my daughter knew as normal would be turned upside down in an instant.
Alexis became suddenly ill a year ago and the normal she knew will never be the same. After numerous emergency room visits and doctors she was diagnosed with a rare syndrome called POTS. She then was diagnosed with Gastroparisis and Ehlers Danlos Syndrome. There is no cure for these illnesses but the hope is with awareness and research there one day will be a cure! Alexis has had to define normal in a different way but she is determined to not let these illnesses define who she is.
Alexis is a courageous young teenager that has endured a lot of medical struggles in her young life. She had two choices, use her experience for good or allow her experiences to ruin her spirit. There is no question what choice she choose! She is a fighter. She is a hero to me.
Our goal is to raise awareness because there are so many others struggling with this illness that just havent been diagnosed correctly. Thats due to lack of Drs experience. So lets get the word out, lets get the research out there and help find a cure!
Thank you for your love and support!
(see below for more info on the illness)
Dysautonomia is an umbrella term used to describe several different medical conditions that cause a malfunction of the Autonomic Nervous System. That means all those things that the body does "automatic" for most doesnt work correctly with individuals living with dysautonomia. It is often called an "invisible illness" because people think you look fine. I have been diagnosed with three types of dysautonomia which effect my daily life. Dysautonomia also explains how, "[POTS is] estimated to impact 1 out of 100 teenagers! That means that most likely you know someone living with this illness but is just not diagnosed properly. The Drs arent familiar with this rare syndrome therefore the process to be disgnosed can be years. Meanwhile most are limited to bed.