EVENT DATE: Mar 11, 2017
FUNDRAISER SET UP DEADLINE: Mar 20, 2017
Location: Lake Seminole Park: 10015 Park Blvd., Seminole, FL 33777
Date and Time: Saturday, March 11th, 2017 with registration packet pick up starting at 8:00am.
If you plan to attend the event, please click on the "register" icon first. You can then register individually, set up a team, or join one to the teams already created, and select your t-shirt size. If you cannot attend the event but want to donate to the cause or one of the teams, click on the "donate" icon. Prompts will show you how to dontate to a specific team, or the event in general.
EVENT SCHEDULE and DETAILS:
The race will start promptly at 9am. Registration and bib pick-up will open at 8am and close at 8:30am. Please plan to arrive early to pick up your bib and registration packet.
The registration fee is $30 per person. Registration includes a free t-shirt, POTS Awareness bracelet, coupons for The YMCA, Tropical Smoothie, Chick Fil A, and more... in addition to post race refreshments.
Raffle tickets may be purchased for $2 each or 3 for $5 on the day of the race. There will be lots of great items in the raffle such as gift cards, salon baskets, and more, so bring some extra cash for your chance to win!!!
In addition there will be prizes awarded to top 5k race finishers, and top fundraising teams.
"I don't want others to have to struggle to find knowledgeable medical help, the way we did." Tava Wilson Tournant
This fun run/walk will benefit The Dysautonomia Project which is a 501.c3 not for profit organization whose goal is to raise awareness of Dysautonomia. Dysautonomia involves disorders of the autonomic nervous system, and usually involve abnormal symptoms in many organ systems, including cardiac, gastrointestinal, neurological, and pulmonary, as well as others. Dysautonomia, an invisible illness, may be one of the most misdiagnosed medical conditions of all time. The biggest problem in autonomic medicine today is the lack of knowledge about dysautonomia in communities and especially community based physicians.
Currently TDP is working in conjunction with Largo Medical Center to open an Autonomic Center of Excellence in Pinellas county where people with autonomic abnormalities may come for medical and emotional support. TDP, together with Largo Medical Center, has the building and lead physician in place. We are working diligently to train other medical personnel. TDP is also now conducting CME courses for medical personnel so they can be trained in disorders of the Autonomic system and how to treat them. Currently this is rarely taught in medical and nursing school programs, meaning there are few medical personnel who are equipped to handle patients who present with autonomic dysfunction.
This effort is personal for me. I am blessed beyond measure to be the mother of Christina Tournant, who voluntarily gave up her fight with POTS/Dysautonomia on March 5th, 2015. Christina loved math, so naturally Pi Day (3/14) was her favorite. Since Pi day falls on a Tuesday, we are holding the event the Saturday before (3/11).
In high school, Christina won numerous awards, both for athletics and academics. Full of passion for knowledge, Christina was valedictorian of her high school and was accepted at her dream university: The Massachusetts Institute of Technology (MIT), in Cambridge, MA. Throughout these years of achievement, Christina suffered from numerous unusual symptoms and spent MANY hours in the offices of a variety of medical specialists. Christina was finally diagnosed with Dysautonomia after a friend suggested this as a possibility. Following her diagnosis, we were given misinformation or no information regarding the many symptoms she suffered from or what to expect. Christina was essentially led to believe that she could control this by "thinking positive thoughts." They told her she would grow out of it and should go ahead and swim for MIT. The Dr's did this because they did not know enough about Dysautonomia to be able to educate us, and unfortunately made it seem like it was not a big deal (which was clearly not the case!!).
The AWARENESS and better understanding of Dysautonomia by medical professionals is KEY, and Christina's story exemplifies why it is SO URGENT.
By spreading awareness about Dysautonomia and helping to fund research and treatment centers, I/we hope to help others who are undiagnosed or misdiagnosed, and are suffering. PLEASE help us do this by getting involved in our event.
No donation amount is too small:-).
Lake Seminole Park
10015 Park Blvd N
Seminole, FL 33777
Race time is 9:00am for 5k. Everyone should plan to arrive and be ready by then.
One mile walkers will start at 9:30
Exercise trail is located at the NE corner of the park. Enter the park and go straight and then curve to the right and keep going past the boat ramp to the 3 parking lots about 100 yards ahead. The event set-up will be at shelters 12 and 13, which are close to these 3 parking lots and the trail.