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K T's Fundraiser:

Pray4Avalanna

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BENEFITING:

K T

THE STORY:

Atypical teratoid rhabdoid tumor (AT/RT) is a rare and deadly tumor diagnosed in childhood. AT/RT most commonly presents as a brain tumor, but can occur elsewhere in the central nervous system including the spinal cord. Only about 30 new case of AT/RT are diagnosed in the US each year.

AT/RT is highly malignant and thus has a high mortality rate. The age of the child at diagnosis has a significant correlation to survival rates. Children over three have seen survival rates in the 70-80% range. Unfortunately, for children under three, that rate falls to 10%. Because most children diagnosed with AT/RT are under three, the overall survival rate has historically been very low.

There currently is no known cure for AT/RT. However, there has been dramatic improvements in treatments recently and there is increased optimism that these new treatments will soon lead to significantly higher survival rates.

Avalanna, also known as Mrs. Bieber had an arranged marriage to Bieber last year at a Jimmy Fund event, and was finally given an opportunity to meet her "husband."  They spent Valentines day together playing board games and most recently hung out at his Today Show Concert and his show at the Apollo Theater where she was his One Less Lonely Girl. 

Join the team so you can help fundraise to help find a cure for AT/RT.

 

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