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Abigail's Kidneys Need a Fighting Chance!

Organized by: Beautiful Miracles

Beautiful's Photo

THE STORY:

Abigail was born with multiple birth anomalies - the second child in our family to be diagnosed with VATER Syndrome, even though it isn't a genetic disorder. She has already faced multiple surgeries for issues such as a giant omphalocele repair, multiple hernias, tethered spinal cord release, cleft lip/palate, urinary reflux and re-implantation of her ureters, and received a cochlear implant.

When she was an infant, we were told she may never walk, talk, or hear. She does all three and does them proudly! Her walk is a run, her hearing is near perfect with a cochlear implant, and though her words are hard for many to understand, she's made huge strides in communication and we understand what she says to us!

Her kidney issues are recurring and constant infection has kept her weight pretty low. She's almost seven years old, weighs 34 lbs on a good day, and almost always complains of pain in her kidney or bladder area. We've had to use catheters to aid in voiding her bladder and kidneys of urine because the damage being done is approaching an irreversible stage.

Abby's creatinine levels are now at 1.1, which is high for even a full grown adult. Her kidney function for both kidneys is down to below 40%. Her neurogenic bladder is giving us a run for our money, but we're aggressively treating this with medication and the use of catheters. We're trying to avoid a permanent or semi-permanent voiding option while she is still in school. It's embarrassing enough that she has bladder issues in school to begin with. She gets teased and has been the victim of bullies already and she's only a first grader!

Abby is using catheters up to six times per day, taking various medications, and requiring multiple trips to the children's hospital for her specialists and monitoring of her condition. The cost of things is overwhelming and we've had to struggle the last couple months more than we've ever had to before. Deciding which bill goes past due and what utility we allow to approach disconnect status is so incredibly stressful, but I will never let Abby suffer or degrade in her condition simply because I "can't afford" to take care of her very important, chronic needs.

It's humbling and a hit to my pride to ask for help this way, but we're a loving, caring, very GIVING family who pays forward more than we ask for. I run a non-profit type group on Facebook for families local to us to request things they are in need of and my children have learned to give and give without ever expecting in return. However, it's time - now - that I reach out and ask for help in staying afloat.

I thank you all in advance for any help at all that can be offered - even if you want to just mail a get well card!

DONATE

To This Fundraiser

$30

 

2% Raised of $1,500 Goal

  • Brittany, Cory and Riley Krieske

    $20

  • Leah

    $10

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Organized by

Beautiful Miracles

This is a direct to organizer fundraiser.

Donor Comments

Leah

Leah

DONATION: $10

3 years ago

Brittany, Cory and Riley Krieske

Brittany, Cory and Riley Krieske

DONATION: $20

3 years ago

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