Megan Rindfuss wrote -In 2013, I took a chance and responded to an ad looking for a home health aide. When I started working for the family of the two young boys who would later change my life, I'd never heard of MPS2, or Hunter Syndrome. "Hunter Syndrome is a rare genetic disease that is progressively debilitating, life-limiting and without a cure. It occurs almost exclusively in males and currently affects approximately 500 boys in the U.S. and less than 2,000 worldwide. Though the disease is present at birth, symptoms become more apparent as the accumulation of GAGs builds within the body, triggering a diagnosis usually between 2 to 4 years old. Most boys with Hunter Syndrome continue to develop physically and cognitively until between the ages 2 and 5 and then begin regressing. These boys gradually lose the ability to talk, walk and eat. Most do not live to see their teen years. Approximately 20% of those affected by Hunter Syndrome do not suffer cognitive impairments or regression and may have normal intelligence but a continuum of physical symptoms." Project Alive is a non-profit organization working to raise funds for a Gene Therapy that could save the lives of boys with Hunter Syndrome. "Gene therapy is a revolutionary approach to treating genetic diseases. It involves a one-time delivery of a normal copy of the defective gene which ideally causes the body to naturally produce the missing enzyme. It is the most promising ‘cure’ that these boys desperately need." Shortly after their diagnosis, Max and Toby began losing their phsycial and cognitive functioning. I watched helplessly for years as both boys lost their ability to talk, play, walk, eat, drink ,and interact with the ones they love. Toby gained his angel wings in May 2015 at 10 years old, and Max gained his in November 2017 at 15 years. Working with Max and Toby taught me more about life than I'd ever learn in a textbook. They showed me the meaning of unconditional love and how to live every day like it's your last. I am truly greatful for my time spent with them. I am running the 2018 Dick's Sporting Goods Pittburgh Marathon to raise Money for Project Alive, to help other boys with their fights with MPS2/Hunter Syndrome.