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Fibromyalgia, Chronic Pain with RX Negligence

Organized by: Jonni Hoskins

Jonni's Photo

THE STORY:

I was diagnosed with Fibromyalgia April 2010. This year, I was diagnosed with osteoarthritis, a pinched nerve and two cervical herniated discs in the neck with sciatica in my spine at the age of 34. So far due to genetics, a diagnosis of MS has not been determined so far. It took years to get to this point- Had I gave up, I would have been lost to my pain and I want to teach others how to cope and keep demanding answers. It was never in my head. I used social media and finding people like me for a condition I never heard of that caused me much loss and pain, but I managed to regain my quality of life. There are many conditions that cause chronic pain and doctors will spoon-feed pills instead of providing safe treatment options. The Mayo Clinic taught me a lot about coping with pain over the years and building a tolerance.


I would like to speak out about how some doctors may ignore pain or misdiagnose chronic pain individuals with depression. To raise funds, I created products and hosts meetings on alternatives such as massage therapy, coping, and stress relief, but it is small scale. The larger goal is to get the cause to the forefront. It is my wish to have doctors listen to their patients when they are in pain for a faster diagnosis, do not dismiss them because of age, or outer appearance. My symptoms could have been caught years ago. This is how I feel. I feel that Fibromyalgia is an indicator of an undiagnosed disease or underlying issue and that pain IS NOT caused by depression alone as advertised by Cymbalta and Lyrica- The side effect of these medication includes suicide! Better judgment should be placed before prescribing to someone who is already in physical pain.  

I was not depressed when my pain began. Anyone diagnosed with this disease deserves to be heard and understood and right to a second opinion without judgment. Bearing the label of depression when you are truly in pain or very ill is an indescribable emotion.


I would like to tell more people about my experience on a larger scale. When I meet people like me, I hear their stories and do my best to console them as someone who lives it everyday. When I go to groups online, there are many who want to give up everyday. On Saturdays, I try to make myself free for discussions as this is something I want to do. If I am the only person who will listen and relate, then I will be that only person for anyone like myself.

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Organized by

Jonni Hoskins

This is a direct to organizer fundraiser.

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