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Beth Songer's Fundraiser:

RUNNING FOR RARE—PROVIDENCE FULL AND HALF MARATHON

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Beth Songer

THE STORY:

National Organization for Rare Disorders, Inc. wrote -

For the tenth consecutive year, patients and advocates will run as members of the Running for Rare Diseases Marathon Team in support of the National Organization for Rare Disorders (NORD).  NORD is dedicated to supporting individuals and families impacted by rare disease and the organizations that serve them through programs of education, advocacy, research and financial assistance services. 

Rare diseases impact the lives of 30 million Americans – two-thirds of whom are children.  On average, it can take a patient 5-7 years to receive an accurate diagnosis, at which time 95% will be told there is no FDA approved treatment or ongoing research to learn more about their disease.  The funds raised from the Running for Rare Diseases Team will support NORD’s Undiagnosed Diseases Program; helping individuals to receive a diagnosis from the National Institutes of Health (NIH).

Donations in support of this campaign will be tax-deductible to the extent permitted by law.  For eight consecutive years, NORD has received the top (4-Star) rating from Charity Navigator, a leading independent evaluator of charities.

The individuals and families helped by NORD often have nowhere else to turn for assistance.  Your support of this campaign is very important to them.  

DONATE

To This Fundraiser

$300

MONEY RAISED
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  • Anonymous

    $75

  • Sanofi Matching Gift

    $75

  • Boat Mom

    $25

  • The MilkMan

    $50

  • Sandra Sperou

    $50

  • Margaret J

    $25

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Fundraise for this Campaign

The Team: $5,455 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Rachel Field

Amount Raised

$1,150

 

230% Raised of $500 Goal

Fundraiser Title

Elke Phillips

Amount Raised

$1,000

Fundraiser Title

Katherine Rogers

Amount Raised

$750

 

150% Raised of $500 Goal

Fundraiser Title

Lora Moore

Amount Raised

$725

 

145% Raised of $500 Goal

Fundraiser Title

Nancy Bernier

Amount Raised

$505

Fundraiser Title

Matt Barrows

Amount Raised

$350

 

35% Raised of $1,000 Goal

Fundraiser Title

Beth Songer

Amount Raised

$300

Fundraiser Title

Brittany Hoffmann

Amount Raised

$275

Donor Comments

Margaret J

Margaret J

DONATION: $25

5 months ago

Sandra Sperou

Sandra Sperou

DONATION: $50

5 months ago

The MilkMan

The MilkMan

DONATION: $50

6 months ago

Boat Mom

Boat Mom

DONATION: $25

Thanks for being your BadA$$ Self Miss Beth! 6 months ago

Sanofi Matching Gift

Sanofi Matching Gift

DONATION: $75

6 months ago

Anonymous

ANONYMOUS

DONATION: $75

6 months ago