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Katherine Rogers' Fundraiser:

RUNNING FOR RARE—PROVIDENCE FULL AND HALF MARATHON

Katherine's Photo
Katherine's Photo
Katherine's Photo
Katherine's Photo
Katherine's Photo
 

THANK YOU, THANK YOU, THANK YOU!
May 09, 2017

I cannot thank you enough for your generous donations! We met our goal and last Sunday, we finished the race!!! Shauna was there cheering the  See more
Katherine Rogers

THE STORY:

Hello Friends and Family!!! This year marks the 2nd year that I will be running for Running For Rare! I am so excited to announce that this year, my partner will be Shauna Sperou! Shauna is a 12-year old girl born with Rothmund-Thomson Syndrome or RTS. There are only about 350 cases of RTS diagnosed around the globe. Shauna is a truly rare child, and not just because of her diagnosis, but because she is such a joy to be around. She loves sports and wants to become a meteorologist some day! I have run and supported several races and Shauna has always been there at the front lines cheering (with some awesome signs too, btw) and handing out water! Please take a look at Shauna's story written by her mom, Laurie: http://running4rare.org/2014/01/19/shauna-rothmund-thomson-syndrome/


Thank you so much for taking the time to visit my page and for donating to such a worthy cause.


National Organization for Rare Disorders, Inc. wrote -

For the tenth consecutive year, patients and advocates will run as members of the Running for Rare Diseases Marathon Team in support of the National Organization for Rare Disorders (NORD).  NORD is dedicated to supporting individuals and families impacted by rare disease and the organizations that serve them through programs of education, advocacy, research and financial assistance services. 

Rare diseases impact the lives of 30 million Americans – two-thirds of whom are children.  On average, it can take a patient 5-7 years to receive an accurate diagnosis, at which time 95% will be told there is no FDA approved treatment or ongoing research to learn more about their disease.  The funds raised from the Running for Rare Diseases Team will support NORD’s Undiagnosed Diseases Program; helping individuals to receive a diagnosis from the National Institutes of Health (NIH).

Donations in support of this campaign will be tax-deductible to the extent permitted by law.  For eight consecutive years, NORD has received the top (4-Star) rating from Charity Navigator, a leading independent evaluator of charities.

The individuals and families helped by NORD often have nowhere else to turn for assistance.  Your support of this campaign is very important to them.  

DONATE

To This Fundraiser

$750

MONEY RAISED
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  • Anonymous

    $50

  • Anonymous

    $25

  • Stella Pestano

    $50

  • Anonymous

    $100

  • Chez Siam Friends of Shauna - Ta, Hnud, Noi, Tukta

    $120

  • Judy & Bill Wormstead

    $35

  • Maureen

    $25

  • Judy and jerry

    $25

  • Lisa & Rob Ryan

    $50

  • Katie

    $20

  • Sandy and Joe Spinelli

    $250

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150% Raised of $500 Goal

Fundraise for this Campaign

The Team: $5,455 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Rachel Field

Amount Raised

$1,150

 

230% Raised of $500 Goal

Fundraiser Title

Elke Phillips

Amount Raised

$1,000

Fundraiser Title

Katherine Rogers

Amount Raised

$750

 

150% Raised of $500 Goal

Fundraiser Title

Lora Moore

Amount Raised

$725

 

145% Raised of $500 Goal

Fundraiser Title

Nancy Bernier

Amount Raised

$505

Fundraiser Title

Matt Barrows

Amount Raised

$350

 

35% Raised of $1,000 Goal

Fundraiser Title

Beth Songer

Amount Raised

$300

Fundraiser Title

Brittany Hoffmann

Amount Raised

$275

Donor Comments

Sandy and Joe Spinelli

Sandy and Joe Spinelli

DONATION: $250

5 months ago

Katie

Katie

DONATION: $20

GO ERIN! GO SHAUNA! #RFRD 5 months ago

Lisa & Rob Ryan

Lisa & Rob Ryan

DONATION: $50

5 months ago

Judy and jerry

Judy and jerry

DONATION: $25

5 months ago

Maureen

Maureen

DONATION: $25

You have an amazing partner! Enjoy your run! 5 months ago

Judy & Bill Wormstead

Judy & Bill Wormstead

DONATION: $35

Many thanks for running and supporting our granddaughter!! 5 months ago

Chez Siam Friends of Shauna - Ta, Hnud, Noi, Tukta

Chez Siam Friends of Shauna - Ta, Hnud, Noi, Tukta

DONATION: $120

5 months ago

Anonymous

ANONYMOUS

DONATION: $100

5 months ago

Stella Pestano

Stella Pestano

DONATION: $50

5 months ago

Anonymous

ANONYMOUS

DONATION: $25

Run ! 6 months ago