David Lynch via Crowdrise
November 08, 2011
BENEFITING: Pulmonary Fibrosis Foundation
EVENT DATE: Nov 06, 2011
The Pulmonary Fibrosis Foundation is important to Anne and me because we have had several close family members and friends affected by this condition. It is also an important part of my professional life. I have been very impressed by the quality of the PFF, in particular their commitment to research development, patient support and political engagement.
Apart from a small contribution to Crowdrise, all funds go directly to the Pulmonary Fibrosis Foundation. I will pay my own expenses for the trip.
Pulmonary Fibrosis (PF) is a devastating lung disease in which over a period of time the lung tissue becomes thickened, stiff, and scarred and lose the ability to transfer oxygen into the bloodstream. An estimated 40,000 people die each year and there are no FDA approved treatments. More than 2/3 of patients will die within 5 years of diagnosis.
The mission of the Pulmonary Fibrosis Foundation is to help find a cure for idiopathic pulmonary fibrosis (IPF), advocate for the pulmonary fibrosis community both locally and in Washington D.C., promote disease awareness, and provide a compassionate environment for patients and their families. The PFF collaborates with physicians, organizations, patients, and caregivers worldwide. From December 1-3, 2011 the PFF will host its first international scientific conference, IPF Summit 2011: From Bench to Bedside, in Chicago. With more than 60,000 members worldwide the Pulmonary Fibrosis Foundation is the international resource for the pulmonary fibrosis community. For more information visit www.pulmonaryfibrosis.orgor call 888-733-6741.