BENEFITING: Sanfilippo Research Foundation, Inc.
ORGANIZER: Sanfilippo Research Foundation, Inc.
Sanfilippo Research Foundation, Inc. wrote -
Benjamin Siedman had Sanfilippo Syndrome, a rare & fatal inherited genetic disorder. Ben & thousands of children like him have a life expectancy between 12 and 20 years. Today there is hope.
The Foundation has been proud to support the research of Dr. Haiyan Fu at Nationwide Children's Hospital for over a decade—her gene therapy work along with that of Dr. Douglas McCarty is poised to move from the lab to human clinical trials!
Sadly this breakthrough was not in time for Benjamin, he passed away earlier in 2014, but we are committed to creating a different outcome for his friends and thousands of others dealing with this disease.
Please join us in a simple glass of Purple Lemonade & change the future for all that suffer from Sanfilippo Syndrome. Thank you!