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John Noble's Fundraiser:

Purple Lemonade for Ben's Dream

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John Noble

THE STORY:

Sanfilippo Research Foundation, Inc. wrote -

Benjamin Siedman had Sanfilippo Syndrome, a rare & fatal inherited genetic disorder. Ben & thousands of children like him have a life expectancy between 12 and 20 years. Today there is hope.

The Foundation has been proud to support the research of Dr. Haiyan Fu at Nationwide Children's Hospital for over a decade—her gene therapy work along with that of Dr. Douglas McCarty is poised to move from the lab to human clinical trials!

Sadly this breakthrough was not in time for Benjamin, he passed away earlier in 2014, but we are committed to creating a different outcome for his friends and thousands of others dealing with this disease.

Please join us in a simple glass of Purple Lemonade & change the future for all that suffer from Sanfilippo Syndrome. Thank you!

The Team: $56,211 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Grey's Purple Lemonade Stand

Amount Raised

$40,638

Fundraiser Title

Team Alex-- The Sanfilippo Warriors

Amount Raised

$7,580

 

217% Raised of $3,500 Goal

Fundraiser Title

Waverly & Oliver McNeil

Amount Raised

$7,503

 

75% Raised of $10,000 Goal

Fundraiser Title

Helping Hand Girls

Amount Raised

$315

Fundraiser Title

Stacey Montgomery

Amount Raised

$125

 

1% Raised of $17,000 Goal

Fundraiser Title

Samantha Boyd

Amount Raised

$50

 

0% Raised of $25,000 Goal

Fundraiser Title

Paula Mynes

Amount Raised

$0

Fundraiser Title

John Noble

Amount Raised

$0

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