BENEFITING: Sanfilippo Research Foundation, Inc.
ORGANIZER: Sanfilippo Research Foundation, Inc.
Alex was diagnosed with Sanfilippo Syndrome in December 2013. Sanfilippo is a rare, genetic, progressive, degenrative, fatal disease. After realizing what we were facing with this disease, we decided to do anything we could to help Alex and other children suffering from Sanfilippo. A treatment is in sight! We are hosting our first Purple Lemonade Stand to raise awarenesss and also fund the treatment being pursued at Nationwide Children's Hospital in Columbus, Ohio. The thought is that if you buy a simple cup of lemonade you are contributing to a possible treatment for children with this devastating disease.
Will you buy a cup of lemonade from our stand and help Alex and the other children with Sanfilippo? Your donation will bring us one step closer to a treatment! We greatly appreciate it! Go Team Alex & the Sanfilippo Warriors!