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Stacey Montgomery's Fundraiser:

Purple Lemonade for Ben's Dream

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Stacey's Photo
Stacey's Photo
Stacey's Photo
Stacey's Photo
Stacey's Photo
Stacey Montgomery

THE STORY:

 

ABOUT Lucas Montgomery :

Lucas was diagnosed with Sanfilippo Syndrome in 2006 at the age of 9. The diagnosis came after several years of searching for answers to why he was losing speech , fine motor skills , inability to sleep at night , restless pacing , unending bouts of upper respiratory infections and mobility issues. With the diagnosis came the words "no treatment , no cure."  As a family , and out of our love for Lucas we felt the need to do something . We started hosting awareness fundraisers within months of his diagnosis . 

Since the time of diagnosis , Lucas is now wheelchair bound , he is Gtube dependent to receive all of his nutrition and medications , he suffers from seizures and painful dystonia episodes and he has lost his speech except for a few single words . Despite these devastating progressive changes Lucas continues to smile heroically through it all .

Your chance to help is here. By donating you are providing hope to other families and children . By donating you will be providing a chance at life by supporting Dr. Fu at Nationwide Children's Hospital and the gene therapy clinical trial . Donate today and pass the word about The Purple Lemonade Stand . 

Donations will go to the Sanfilippo Research Foundation 

About the Foundation :

 

Sanfilippo Research Foundation, Inc. wrote -

Benjamin Siedman had Sanfilippo Syndrome, a rare & fatal inherited genetic disorder. Ben & thousands of children like him have a life expectancy between 12 and 20 years. Today there is hope.

The Foundation has been proud to support the research of Dr. Haiyan Fu at Nationwide Children's Hospital for over a decade—her gene therapy work along with that of Dr. Douglas McCarty is poised to move from the lab to human clinical trials!

Sadly this breakthrough was not in time for Benjamin, he passed away earlier in 2014, but we are committed to creating a different outcome for his friends and thousands of others dealing with this disease.

Please join us in a simple glass of Purple Lemonade & change the future for all that suffer from Sanfilippo Syndrome. Thank you!

 

DONATE

To This Fundraiser

$125

MONEY RAISED
  • Mike Martin

    $25

  • LexAnn and Steve Alig

    $100

  •  
  •  
  •  
 

1% Raised of $17,000 Goal

Fundraise for this Campaign

The Team: $56,211 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Grey's Purple Lemonade Stand

Amount Raised

$40,638

Fundraiser Title

Team Alex-- The Sanfilippo Warriors

Amount Raised

$7,580

 

217% Raised of $3,500 Goal

Fundraiser Title

Waverly & Oliver McNeil

Amount Raised

$7,503

 

75% Raised of $10,000 Goal

Fundraiser Title

Helping Hand Girls

Amount Raised

$315

Fundraiser Title

Stacey Montgomery

Amount Raised

$125

 

1% Raised of $17,000 Goal

Fundraiser Title

Samantha Boyd

Amount Raised

$50

 

0% Raised of $25,000 Goal

Fundraiser Title

Paula Mynes

Amount Raised

$0

Fundraiser Title

John Noble

Amount Raised

$0

Donor Comments

LexAnn and Steve Alig

LexAnn and Steve Alig

DONATION: $100

What a beautiful boy!! Our prayer for you is for your lives to be filled with joy, comfort, peace within and the love of Jesus Christ. Please tell Lucas that though we've never met, we love him! 4 years ago

Mike Martin

Mike Martin

DONATION: $25

Lucas Montgomery 4 years ago