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THE CHILDRENS MEDICAL RESEARCH FOUNDATION INC's Fundraiser:

Cheers to Kirby with Purple Lemonade

THE CHILDRENS MEDICAL RESEARCH FOUNDATION INC's Photo
THE CHILDRENS MEDICAL RESEARCH FOUNDATION INC's Photo
THE CHILDRENS MEDICAL RESEARCH FOUNDATION INC's Photo
THE CHILDRENS MEDICAL RESEARCH FOUNDATION INC's Photo
THE CHILDRENS MEDICAL RESEARCH FOUNDATION INC's Photo
THE CHILDRENS MEDICAL RESEARCH FOUNDATION INC's Photo
THE CHILDRENS MEDICAL RESEARCH FOUNDATION INC's Photo
THE CHILDRENS MEDICAL RESEARCH FOUNDATION INC's Photo
THE CHILDRENS MEDICAL RESEARCH FOUNDATION INC's Photo
THE CHILDRENS MEDICAL RESEARCH FOUNDATION INC's Photo
THE CHILDRENS MEDICAL RESEARCH FOUNDATION INC's Photo
THE CHILDRENS MEDICAL RESEARCH FOUNDATION INC's Photo

THE STORY:

Brad and I formed this Foundation because of our four-year-old daughter, Kirby, the disease she was afflicted with, and our hope that Sanfilippo and its devastating progression would not manifest itself within her — our beautiful bundle of joy. The solution seemed simple. Raise funds to enable researchers to advance and expand their work to find a cure. We chose to fight this disease.

Now 19 years later, although Sanfilippo has taken its toll on Kirby, she continues to defy her affliction with seemingly endless resolve and still an occasional smile for us to cherish.   A smile that brings us reassurance of her comfort and delight in her moments of happiness — a reminder of her amazing grace. She is our hero.

As her battle continues, our dream of a cure could come true because of the efforts of a team at Nationwide Children’s Hospital in Columbus, OH, that is ready to bring its gene therapy program to human clinical trial. Joining forces with other families and foundations, we hope to raise $1 million for testing required by the FDA to bring this work to fruition as early as December 2014.

The price to fund these studies might seem insurmountable. But all Brad and I have to do is remember what doctors first told us 19 years ago: Nothing can be done. Enjoy her while you have her.

Kirby's fortitude must not be in vain. No matter what the future holds for her, our mission is still for her. Because it is her story that is repeated in hundreds of families around the world, hundreds of stories shaped by one cure. And it has been your faithful belief in our mission that has allowed Kirby’s story to be written.  It has been your unwavering support of the Foundation that has allowed it to issue grants totaling over $3.7 million and helped research to reach this level. It can be done.

From the early days when we chose to fight this disease and found only one researcher in the world working on Sanfilippo, to today when we face an exceptional opportunity, our mission to find a cure has never been more defined.   We ask for your support in taking this final step to turn hope of a cure into a reality.

So raise a glass of Purple Lemonade and say cheers to these children!

Sue and Brad Wilson

DONATE

To This Fundraiser

$6,400

MONEY RAISED
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  • Melgar Suarez Family

    $25

  • Ron Ewert

    $25

  • THE CHILDRENS MEDICAL RESEARCH FOUNDATION INC

    $10

  • Ethan Beck

    $50

  • Kathi and Nick Brummet

    $50

  • Lynch

    $50

  • A long-time fan and supporter...

    $100

  • Lynn S

    $100

  • John Berzanskis/AMS Mechanical Systems, Inc.

    $250

  • the mulroys

     

  • Kimberly Koranda

    $1,000

  • Alex & Jackson

    $25

  • June Arra

     

  • Betsy and Steve Fowler

    $50

  • Katie and Mike Lynch

    $500

  • Steven Schillne

    $20

  • Greg Moore

    $20

  • Mike Falco

    $20

  • Elizabeth Lewcock

    $50

  • Nancy Partipilo

     

  • Kids' Purple Stands for Kirby

    $820

  • Diana Mennone

    $25

  • Dorothy, Jeremy ,^^Ryan^^ Mask

    $100

  • Annabella Baker

    $25

  • Dr. Nancy Mazur

    $25

  • Mary, Kristen,Jamie&Jessica;

    $100

  • Happy birthday Rhianna

    $100

  • Auntie Di and Uncle Kevin

    $200

  • Kathleen McClellan

    $25

  • Uncle Rob, Jamie, Jessica and Kristen

    $75

  • Koch Family

    $100

  • Hannah Ouellette

    $25

  • Donna & Cory Gabel

    $150

  • "Purple Lemonade Stand"/Tag Sale

    $310

  • Marylou Cassille

    $25

  • Mom and Dad

    $500

  • Stacey Pribyson

    $50

  • Cheryl and Frank Sledjeski

    $35

  • Donna and Alan Theriault

    $100

  • Craig, Jeannette, and Mari Belanger

    $50

  • Michael & Rita Fasci and Family

    $50

  • Peggy Matters and Family

    $25

  • Rod & Janice Reynolds

    $200

  • Carol and Stuart Sisco

    $50

  • Lemonade Stand Goes Chocolate

    $565

  • Craig, Jeannette, & Mari

    $50

  • Elaine & Roger Karabin

    $100

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13% Raised of $50,000 Goal

Fundraise for this Campaign

The Team: $6,400 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Rhianna Logan

Amount Raised

$3,060

 

0% Raised of $1,000,000 Goal

Fundraiser Title

Maggie Wilson

Amount Raised

$1,870

Fundraiser Title

Molly Russell

Amount Raised

$1,470

Fundraiser Title

Kelly Brummet

Amount Raised

$0

Donor Comments

Elaine & Roger Karabin

Elaine & Roger Karabin

DONATION: $100

In honor of Rhianna's 23rd birthday. 2 years ago

Craig, Jeannette, & Mari

Craig, Jeannette, & Mari

DONATION: $50

We love you Rhianna! 3 years ago

Lemonade Stand Goes Chocolate

Lemonade Stand Goes Chocolate

DONATION: $565

Thank you to all who helped the Purple Lemonade Stand go CHOCOLATE! It was a very cold day to stand outside but it sure helped sell the Hot Chocolate. With the addition of check donation we raised $690! We love our friends! 3 years ago

Carol and Stuart Sisco

Carol and Stuart Sisco

DONATION: $50

Wishing you peace and love always. 3 years ago

Rod & Janice Reynolds

Rod & Janice Reynolds

DONATION: $200

In honor of Rhianna a beautiful young woman with loving and dedicated parents, Gene and Cindy. Love, Rod & Janice 3 years ago

Peggy Matters and Family

Peggy Matters and Family

DONATION: $25

It's a beautiful winter day to enjoy a cup of hot chocolate !! With Love to Rhianna, The Matters Family 3 years ago

Michael & Rita Fasci and Family

Michael & Rita Fasci and Family

DONATION: $50

Happy Birthday Rhianna and many more, with love and God Bless. 3 years ago

Craig, Jeannette, and Mari Belanger

Craig, Jeannette, and Mari Belanger

DONATION: $50

Happy Birthday Rhianna-We love you! 3 years ago

Donna and Alan Theriault

Donna and Alan Theriault

DONATION: $100

3 years ago

Cheryl and Frank Sledjeski

Cheryl and Frank Sledjeski

DONATION: $35

3 years ago