BENEFITING: Sanfilippo Research Foundation, Inc.
Elisa Linton was diagnosed at the age of four with a rare genetic disorder called Sanfilippo Syndrome, MPS lllB, for which there is no cure or treatment. Now at the miraculous age of 19, this devastating disease is significantly claiming her life.
Instead of succumbing to the disease, Elisa’s parents Randall and Elisabeth chose the road less traveled and began the foundation to share the story of their daughter, spread awareness about Sanfilippo Syndrome and connect with other families. The ultimate goal is to raise money to fund research and find a cure in Elisa's life time – it is a daily crusade that the Linton family willingly charts. They have devoted their lives to bringing hope to every family who has a child afflicted with Sanfilippo syndrome.
Their community of friends, medical specialists and local businesses have all joined in, surrounding this family with love, financial support, and volunteering in special ways, helping to raise over $4.5 million for research since 1999 with 96% of every dollar donated being committed to research.
The gene therapy program of Drs. Haiyan Fu & Douglas McCarty at Nationwide Children's Hospital is near making that hope a reality.
Please help us change hope to life by supporting our efforts through a simple glass of Purple Lemonade. Thank you.