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CURE SANFILIPPO FOUNDATION's Fundraiser:

Saving Eliza -Cure Sanfilippo with Purple Lemonade!

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THE STORY:

Please buy a glass of Purple Lemonade to help Eliza and her friends.

Eliza was recently diagnosed with a rare genetic disease called Sanfilippo Syndrome Type. Like most people, we had never heard of it.

Children with this disorder (MPS III) are missing an enzyme which is essential in breaking down certain sugar molecules. The result has grave health consequences with life expectancy in the early teens, sometimes less. Gradually a child will lose the capacity for speech, walking, swallowing, and ultimately the loss of vital organ functions.

There is no cure, nor is there any treatment to slow the condition. It is a parent’s worst nightmare and an unfair sentence for any innocent child. We are crushed and have been dealing as best we can with the shock and emotion of all of this.

There are research teams who are making significant breakthroughs in Sanfilippo Syndrome research, including a gene therapy from Nationwide Children's Hospital that has been successful in animal testing. They are so close. More testing and trials are necessary, but the rarity of this syndrome (1 in 70,000) makes it a challenge for researchers to get adequate funding.

The clock is ticking for Eliza. Every minute her cells are being damaged. Our only hope is that we can raise enough awareness of Sanfilippo Syndrome and funding to aid researchers, in their quest for a cure.

DONATE

To This Fundraiser

$170

MONEY RAISED
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  • Anonymous

    $20

  • Akiko

    $15

  • Carol Hart

    $100

  • Gallo-Geyer Family

    $10

  • William Atkinson

    $25

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1% Raised of $25,000 Goal

Fundraise for this Campaign

The Team: $170 TOTAL RAISED SO FAR

JOIN THE TEAM

Want to help Fundraise or Volunteer for this amazing Fundraiser? Join the Team

Donor Comments

William Atkinson

William Atkinson

DONATION: $25

Thank you Grey for being a "Change Maker" and a great role model. 3 years ago

Gallo-Geyer Family

Gallo-Geyer Family

DONATION: $10

God Bless you! We will always show our support and love! 3 years ago

Carol Hart

Carol Hart

DONATION: $100

God Bless you all in this amazing journey to find a cure for Sanfilippo! 3 years ago

Akiko

Akiko

DONATION: $15

May God Bless You All... 3 years ago

Anonymous

ANONYMOUS

DONATION: $20

3 years ago