BENEFITING: JLK SANFILIPPO RESEARCH FOUNDATION
The mission of the JLK Sanfilippo Research Foundation is to create awareness of this very rare genetic syndrome and to raise funds to help support private companies and non-profit organizations in their quest to develop therapies that will combat Sanfilippo Syndrome.
Imagine yourself as a parent who is told their child has a very rare genetic syndrome for which there is no cure and no treatment. The doctors don't even look you in the eye as they tell you, all you can do is to take your child home and love them. Imagine getting that diagnosis 3 times. That is what happened to our family.
Our 3 beautiful daughters have Sanfilippo Syndrome Type C. All parents have dreams for their kids. When Jillian was diagnosed over 15 years ago, there was no hope. But the technology exists today and the researchers are ready to cure Sanfilippo Syndrome. All they need is money.
Buy a glass, buy a pitcher, host a stand and help us take a Stand with Purple Lemonade. Thank you.