BENEFITING: LIV LIFE FOUNDATION
ORGANIZER: LIV LIFE FOUNDATION
LIV LIFE FOUNDATION wrote -
The Liv Life Foundation was created in an effort to help fund medical research for the genetic disorder, Sanfilippo Syndrome. Our daughter, Livia, has been diagnosed with one of the 13 MPS disorders. Liv Life works diligently for all children and families affected by these disorders. Our mission is to help fund a cure or treatment for this fatal disorder.
The funds that are raised through the Purple Lemonade Stand will be sent to Nationwide Children's Hospital who is on on the cutting edge of Sanfillipo Syndrome research - these funds will help bring their work to clinical trial.
This virtual lemonade stand is a way for our entire MPS community, our friends and family to work together to bring this treatment to reality. It is a friendly competion that allows YOU to build a virtual lemonade stand by donating any amount you see fit. You form your team under the foundation of your choice, like Liv Life, and help by posting this on your social media pages and encouraging others to buy a virtual glass of lemonade. Please help, the glass of Purple Lemonade you buy could be the one to put us over the top. Thank you.