BENEFITING: National MPS Society, Inc.
ORGANIZER: National MPS Society, Inc.
National MPS Society, Inc. wrote -
The National MPS Society exists to find cures for MPS and related diseases. We provide hope and support for affected individuals and their families through research, advocacy and awareness of these devastating diseases.
Since 1974 the Society has supported individuals and families affected with MPS and related diseases. We are governed by a member-elected volunteer Board of Directors, many of whom are parents of children with MPS. We benefit from the expertise of a Scientific Advisory Board, comprised of world-class physicians, researchers and medical professionals throughout the world.
By joining with Sanfilippo Syndrome foundations as part of Purple Lemonade Stand for Courage, the Society is advancing syndrome specific directed research toward a cure for MPSIII. Proceeds will go towards furthering the gene therapy work being done at Nationwide Children's Hospital and/or Manchester University Institute of Human Genetics so these projects reach clinical trials.
Purple is the color of Courage and it is fitting that a glass of Purple Lemonade will help find a cure for Sanfilippo Syndrome. Please join us. Thank you.