BENEFITING: TEAM SANFILIPPO FOUNDATION
ORGANIZER: TEAM SANFILIPPO FOUNDATION
My sons Ryan and Brayden were both diagnosed in 2009 with MPSIIIA - aka Sanfilippo Syndrome. Ryan is 9 years old and Brayden is 6. Sanfilippo Syndrome is a genetic disorder that causes progressive neurological damages, specifically in the brain, and leads to premature death. Many children with Sanfilippo will not make it through their teens, if they make it to their teens. There is currently no treatment and no cure. However a treatment / hopeful cure is on the horizon and in the works but as with anything, money is needed. Any small amount helps to save the lives of so many children, including Ryan and Brayden.