Skip to content
shilohcarter's profile image - click for profile

Team Nola's Fundraiser:

Purple Lemonade for Team Sanfilippo

Team's Photo
Team's Photo
Team's Photo
Team's Photo
Team's Photo
Team's Photo
Team's Photo
Team's Photo
Team's Photo
Team's Photo
Team's Photo
Team's Photo
Team Nola

THE STORY:

Nola, our sweet daughter, will turn 2 on January 10, 2015. She has Sanfilippo Syndrome A (MPS IIIA).

Children suffering from Sanfilippo are missing an essential enzyme for normal cellular function. Over time, a toxic material called heparan sulfate builds up in their brain & body leading to severe disability & death before they even reach their teen years.

BUT there is HOPE! Gene therapy clinical trials at Nationwide Children's Hospital (Columbus, Ohio) scheduled for 2015. BUT these clinical trials are still lacking necessary funds. 

We hope to see Nola have the opportunity to become the woman she was created to be. We are desperately hoping that we will not lose her to this devastating disorder. 

Team Sanfilippo is diligently working to make our hope & the hope of so many other parents of children with Sanfilippo Syndrome a reality. We are so grateful for the work they have accomplished so far & want to do whatever we can to fund the medical research & clinical trials that could possibly treat or cure Sanfilippo Syndrome. 

Please consider supporting Team Sanfilippo. Your support gets us one step closer to making our hope a reality! 

Thank you! 

Shiloh & Derek Carter 
Team Nola
facebook.com/TeamNolaCarter
TeamNola4ACure@gmail.com

TEAM SANFILIPPO FOUNDATION - www.teamsanfilippo.org

Team Sanfilippo Foundation was started by a group of parents with the mission of finding potential therapies that can be tested clinically in the near future. It is our desire to advance research, education, improve the quality of life for the children affected by this disorder & ultimately find a cure.

Due to recent scientific advancements in the areas of enzyme replacement, gene therapy, & small molecules which has led to the initiation of clinical programs for Sanfilippo Syndrome, we are focused on the development of combined therapies to give children the best possible treatment strategies.

Help us realize this focus & bring the gene therapy program at Nationwide Children's Hospital to clincial trial. Team Sanfilippo is a 501(c)3 nonprofit foundation. All contributions are tax deductible. Thank you! 

DONATE

To This Fundraiser

$9,100

MONEY RAISED
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  • Shiloh, Derek, & Caden Carter

    $500

  • The Bankstons

    $100

  • KL

     

  • Anonymous

    $20

  • Chloe

    $50

  • Hanna & Eron Smith

    $100

  • Anonymous

    $180

  • Eric, Deanna, Evelyn & Will

    $50

  • Anonymous

    $50

  • Holcomb's

    $100

  • anonymous

    $50

  • Davis Family

    $25

  • Jenny Holcomb

    $50

  • in Memory of Jean Knipp

    $100

  • The Mims Family

    $25

  • Dorene Witter

    $10

  • Lisa Morales Mixed Media

    $40

  • Anonymous

    $100

  • Anonymous

    $7,500

  •  
  •  
  •  
 

91% Raised of $10,000 Goal

Fundraise for this Campaign

The Team: $15,880 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Team Nola

Amount Raised

$9,100

 

91% Raised of $10,000 Goal

Fundraiser Title

Jennifer Kapes

Amount Raised

$3,840

 

77% Raised of $5,000 Goal

Fundraiser Title

Tricia Horan Gates

Amount Raised

$2,500

 

10% Raised of $25,000 Goal

Fundraiser Title

Nikole Miller

Amount Raised

$0

Donor Comments

Anonymous

ANONYMOUS

DONATION: $7,500

2 years ago

Anonymous

ANONYMOUS

DONATION: $100

GO NOLA!!!! 2 years ago

Lisa Morales Mixed Media

Lisa Morales Mixed Media

DONATION: $40

Proceeds from two butterfly prints 2 years ago

Dorene Witter

Dorene Witter

DONATION: $10

2 years ago

The Mims Family

The Mims Family

DONATION: $25

3 years ago

in Memory of Jean Knipp

in Memory of Jean Knipp

DONATION: $100

Jean Knipp lived in Orange, Texas. Happily married to Randolph and has one son, Charles. 3 years ago

Jenny Holcomb

Jenny Holcomb

DONATION: $50

mascara fund raiser. :) 3 years ago

Davis Family

Davis Family

DONATION: $25

3 years ago

anonymous

anonymous

DONATION: $50

3 years ago

Holcomb's

Holcomb's

DONATION: $100

3 years ago