EVENT DATE: May 20, 2012
Ashley McGee wrote -
Quinn was diagnosed with EB in August 2011. EB makes the skin so fragile that the slightest friction causes blisters and skin tears. The eyes, mouth, throat and other internal organs are also affected . She is currently part of a clinical trial in Minnesota to find a cure for this awful disease. In December she underwent a bone marrow transplant at only 4 months old. Please help us raise money not only for Quinn but to help find a cure for EB. You can learn more about EB at www.debra.org and Quinn's journey on http://www.caringbridge.org/visit/quinnseymour .