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Eric Scroggins' Fundraiser:

Race for David and AJ

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Eric Scroggins via Crowdrise
January 06, 2012

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BENEFITING: ADRENOLEUKODYSTROPHY FOUNDATION

EVENT DATE: Apr 28, 2012

Eric Scroggins

THE STORY:

As many of you are aware, my nephew recently passed away after a brave fight with ALD. Unfortunately, his younger brother, AJ, is also afflicted with the same cruel disease.  I am running in the Scenic City Half Marathon in Chattanooga on February 25th and the Country Music Marathon in Nashville on April 28th in an effort to raise awareness of the disease and as a tribute to David.  Donations will benefit the Adrenoleukodystrophy Foundation and are 100% tax deductible

Adrenoleukodystrophy, or ALD, is a rare genetically determined neurological disorder that affects 1 in every 17,900 boys worldwide. Those affected develop normally until the onset of symptoms occurs, typically between the ages of 4 and 10. Symptoms can rival those of attention deficit disorder before serious neurological involvement becomes apparent. The symptoms progress rapidly and lead to a vegetative state within two years, and death anytime thereafter.

The disease received some recognition after the 1992 movie "Lorenzo's Oil" with Nick Nolte and Susan Sarandon; however, the disease is relatively unknown to most people.  First discovered in 1923, the disease continues to receive little recognition or funding primarily because there is not enough profit for big pharmaceutical companies.  AJ is currently undergoing a clinical trial for treatment with Lorenzo's Oil at Johns Hopkins University in Baltimore, however, Johns Hopkins has relied on a grant from the National Institutes of Health for years and it was not awarded this past November.  There is a very good chance that the trial will end this September leaving AJ with no other means of obtaining the treatment since Johns Hopkins is the only place worldwide administering Lorenzo's Oil.

We are currently working with the Adrenoleukodystrophy Foundation to explore cell therapy and gene therapy options that might provide answers that the oil could not.  Your donations to this worthy cause are appreciated by our family and the families of all young boys suffering from ALD.

with love,

-Eric  
  

DONATE

To This Fundraiser

$1,850

MONEY RAISED
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  • Eric & Jenn Scroggins

    $100

  • Jennifer (Mommy)

    $100

  • Sherry and Joe Hixon

    $50

  • Terry, Kim & Sara Smith

    $150

  • Michael, Teah, and Annabelle

    $50

  • Paul & Beth Broyles

    $100

  • Shannon Gimple & Family

    $50

  • Rhonda, Toni and Ella

    $100

  • Auntie, Nancy, Nadine & DJ

    $200

  • Harvey Whisler

    $100

  • Matt & Jenny Lyons

    $100

  • Dave and Sharon Scroggins

    $100

  • Anonymous

    $250

  • Sondra Travis LPN

    $50

  • Nicole Salas

    $50

  • Lynn and Ken Bellas

    $25

  • Lori Korjeski

    $25

  • Eric Scroggins (shirt proceeds)

    $250

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62% Raised of $3,000 Goal

Fundraise for this Campaign

The Team: $1,850 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Eric Scroggins

Amount Raised

$1,850

 

62% Raised of $3,000 Goal

Fundraiser Title

Rhonda Hicks

Amount Raised

$0

Fundraiser Title

Michelle Whisler

Amount Raised

$0

Donor Comments

Eric Scroggins (shirt proceeds)

Eric Scroggins (shirt proceeds)

DONATION: $250

5 years ago

Lori Korjeski

Lori Korjeski

DONATION: $25

6 years ago

Lynn and Ken Bellas

Lynn and Ken Bellas

DONATION: $25

Go Eric! 6 years ago

Nicole Salas

Nicole Salas

DONATION: $50

6 years ago

Sondra Travis LPN

Sondra Travis LPN

DONATION: $50

In memory of little David.. Miss you bunches.. 6 years ago

Anonymous

ANONYMOUS

DONATION: $250

6 years ago

Dave and Sharon Scroggins

Dave and Sharon Scroggins

DONATION: $100

6 years ago

Matt & Jenny Lyons

Matt & Jenny Lyons

DONATION: $100

6 years ago

Harvey Whisler

Harvey Whisler

DONATION: $100

6 years ago

Auntie, Nancy, Nadine & DJ

Auntie, Nancy, Nadine & DJ

DONATION: $200

6 years ago