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Rachel Taylor

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Aaron
Aaron SAYS:
Wow. Just wow!!! Thank you f…
Wow. Just wow!!! Thank you for fueling my #EBRun4Ermias. In just 9 hours, I'll be running my first half-marathon in honor of Ermias, who may never get a chance to run in any marathon.

Not sure if you know where your funds are going so here is a link to a short video with Pearl Jam's Eddie Vedder and a few people who are dealing with EB: https://www.youtube.com/embed/QSJvD6msRoo. Watch the video and you'll see why I'm running. I am hopeful. We are hopeful. A cure for ‪#‎EB‬ is near!

Thank you. ‪Thank you for the support!

If you'd like to keep track of my every move during the run tomorrow, go here and select our Seattle race, type in my name and follow the prompts. The GPS sticker on my shoe gives you the chance to track my progress. I'll be slow but I'll be crossing that 13.1 miles finish line thanks to the fuel you've given me and Ermias. Hope is near! Here is the link: https://www.competitorwireless.com/

You rock! Thank you-

Sincerely,
Aaron (+ Ermias and the rest of the Yantis-Blank family)
3 years ago
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Aaron
Aaron SAYS:
Rachel: We so appreciate y…
Rachel:

We so appreciate your contribution to my EB Run for Ermias (#EBRun4Ermias). You know how much I hate running--but your donation gives me the energy to keep raising money and attention for Ermias. Your generosity will directly benefit Epidermolysis Bullosa Research Partnership in their quest to fund research for Ermias's rare disease. All we can do is support folks like them so that we have the hope that one day we'll help Ermias live a normal life. As of today, I'm up to 6 miles... I have a bit over a month to get the other 7 miles in!! :) Happy running and thank you!

If you ever need me to help with a charitable cause of your own, please let me return the favor. Again, thanks so much for all you've done for #EBRun4Ermias and EBRP.

-Aaron (& Ermias) and the rest of our family
3 years ago
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Rachel Taylor
Seattle, WA United States
CROWDRISING SINCE: Mar 16, 2015
Stuff About Me:
The person who created this page is probably preparing something riveting to post about everything they're doing to give back. We recommend you sit at your computer and hit refresh over and over until their story goes live. You should also scroll down and see if they have a fundraiser going so you can support 'em.

Rachel
Taylor

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