Let's show that there truly is a "Rae of Hope" in beating this disease!
October 29, 2016
BENEFITING: AUTOIMMUNE ENCEPHALITIS ALLIANCE INC
EVENT: Florence Forth 2017
EVENT DATE: Mar 04, 2017
Kimberly Ehmann wrote -
Hi! We are team Rae of Hope for NMDA, and we need your help! We are participating in a fundraising effort for a 5k race to help support a cause you've probably heard us talking about a lot- Autoimmune Encephalitis. TWO of our team members have a form of this called Anti NMDA Receptor Encephalitis, and it has not only changed our lives forever, it has changed our family and friends as well. Our brain swells and becomes inflamed as our body weakens and they battle it out. This disease steals your memory, takes over your body and mind, turns both your brain and body against you and leaves your life turned upside down. We are the lucky ones though. We are still here, still fighting, carrying on the memory of those who have lost their battles. We are not only fighting for ourselves everyday, we are fighting for lifesaving education and awareness, better ways to diagnose and treat, and research to understand the many, many unknowns of AE. In a nutshell, there is no cure, no known cause, no standard treatment that works for everyone. Many of our lives consist of trial and error medications, hoping one works enough to give us even just a break, such as high dose, long term steroids, IVIG, plasmapherisis, and chemotherapy in pill and IV forms. We have endless infusions, ER visits, Drs appointments, hospital stays and more. From migraines to seizures to losing the ability to walk or talk or read or write.... we've battled it all. We are babies, toddlers, children, and teens, men and women of all ages. We come from all over the world, every country and all races, shapes, sizes, and each with our own story.We are survivors, we are caretakers, we are parents and husbands and wives and children who have lost someone. We come together to support each other because we are a family, tied together by this common, life changing, devastating disease. Now we ask you to join us in our fight! We need your help to meet our fundraising goal to benefit this cause that means so much to us. Every donation helps us get closer to our goal, so please consider donating today! Thank you so much!