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Jeff Womack's Fundraiser:

Raise funds for PKU Awareness Month

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Jeff Womack via Crowdrise
May 28, 2015

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Jeff Womack


May is PKU awareness month. Phenylketonuria is a rare recessive genetic disorder that prevents people their entire lives from eating many of the foods we take for granted. Infants are diagnosed at birth and must maintain an extremely rigorous and limited diet to live a normal life. 1 in 19,000 people in the United States are affected by this disorder and the ratios are even more significant in Europe. Just about every major source of protein is off limits as it will cause severe mental retardation over time.

The disease has been recognized for the past 60 years, but treatment is slow going. Synthetic and rare organic medical formula supplements their protein intake, yet the social effects of children eating "different" food than others at school can be more harmful than the disease. non-PKU children have complained about the smell of the formula and have bullied children with PKU because of their differences from the norm. There are states that refuse to pay for the expensive medical formula for children with PKU. Most states do not pay for the even pricier and more scarce medical food.

There are a few medical alleviations out there, but as it stands there is no cure. The main reason for this is limited funds for research into this field. With the major advances in genetic research, a cure for this disorder is only a few dollars away.

Two of my three young boys have PKU and are working hard to live normal lives. Many families living with PKU have it worse than mine because of their geographic location, lack of medical expertise and limited funds. My goal is to raise funds, donate it to the National PKU Association with the sole purpose of funding research for a cure. We are so close to solving this condition and your help in this fight to eliminate what psychologist say is the No. 2 cause of mental retardation next to Down's syndrome.

Thank you for your time and consideration!


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3 years ago