Raising Money for Epilepsy and Max David
Organized by: Laura May
This Fundraiser is important to me because from a very young age, I have seen my older brother Max David battle with seizures. Max started having seizures at the age of 2, before I was even born. In fact, my parents were not planning on having any kids after Max because my mother did not handle the stages of pregnancy well.
When Max started to get seizures around the age of 2, and was diagnosed with Epilepsy, the doctor told my parents that it would be advisable for them to have another child so that Max could have a sibling he could learn from that would help in his developmental growth. That's when my parents decided to try for a second kid. So here I am, as Laura May, Max David's younger sister. :)
I grew up seeing my brother struggle with seizures, signs of autism, being hyper active (due to the high dosages of medication) and the occasional out burst of frustration and temper tantrums. Max has to be on medication for life and still gets seizures at least 5 times out of the year to this day. His seizures have reduced throughout the year as he has gotten older. As a toddler, my mother told me there were times where he would get 8 to 10 seizures a day. My parents went through a lot having to deal with my brother having Epilepsy.
Epilepsy is a brain disorder that causes people to have recurring seizures. The seizures happen when clusters of nerve cells, or neurons, in the brain send out the wrong signals. People may have strange sensations and emotions as well as violent muscle spasms or lose consciousness. There is no cure for Epilepsy although being on medication helps to reduce the amount of seizures one can have. Since Max was diagnosed with epilepsy at a stage when his brain was still young and developing, he developed a learning disability. There is a child-like innocence to him in the way he lives his life.
There are some things, those affected with Epilepsy will not be able to do due to safety reasons. Max can't drive or operate a vehicle. He also requires assistance in some care taking needs, which causes him to be dependant on my mother to this day. He can commute on his own by public transportation and is more than happy whenever he gets to do things on his own and is independent. As best as we can, we as a family, when health and safety isn't being compromised, we encourage the independence that he seeks as we know it is necessary and important.
For this Fundraiser, I have decided to donate 60% of the proceeds to the Epilepsy Foundation http://www.epilepsy.com and 40% to a savings fund for Max.
When my dad passed away (from brain tumor),the main concern my family and I think about a lot is what will happened to Max if my Mother is no longer around. Also, my mother has been getting tired and sick a lot lately and I believe it will be helpful for me to help contribute to a savings fund for Max so that he is set up to win in the event something unfortunate happens in our family again.
My mother and Max live in Singapore, and I live in Los Angeles, CA . As a daughter and sister who saw her parents and brother go through the ordeal of dealing with this illness, how much it has affected my family's lives and the sacrifices that have been made and continue to be made, and as someone who keeps getting more concerned about my brother's future given the circumstances, this fundraiser is defintitely one that is extremely personal to me. I also see this as the start to me getting more involved with charity organizations associated with Epilepsy as well as me being more involved in the cause to help continue the research needed for this illness. Most importantly, this is the start of my contribution in being a stand for all those affected by Epilepsy.
Thank you for taking the time visit my Crowd Rise funding page for the Epilepsy Foundation and my brother Max David.