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Carolyn Spiro's Fundraiser:

Raising money for Tay-Sachs research

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BENEFITING: NATIONAL TAY SACHS & ALLIED DISEASES ASSOCIATION INC

EVENT DATE: May 17, 2014

Carolyn Spiro

THE STORY:

I will be running the Brooklyn Half Marathon on May 17th to raise money for Tay-Sachs research, a cause that is really important to me. Please help me in raising money to fight this terrible disease!

Tay-Sachs disease is a rare inherited disorder that progressively destroys nerve cells (neurons) in the brain and spinal cord.

The most common form of Tay-Sachs disease becomes apparent in infancy. Infants with this disorder typically appear normal until the age of 3 to 6 months, when their development slows and muscles used for movement weaken. Affected infants lose motor skills such as turning over, sitting, and crawling. They also develop an exaggerated startle reaction to loud noises. As the disease progresses, children with Tay-Sachs disease experience seizures, vision and hearing loss, intellectual disability, and paralysis. An eye abnormality called a cherry-red spot, which can be identified with an eye examination, is characteristic of this disorder. Children with this severe infantile form of Tay-Sachs disease usually live only into early childhood.

Other forms of Tay-Sachs disease are very rare. Signs and symptoms can appear in childhood, adolescence, or adulthood and are usually milder than those seen with the infantile form. Characteristic features include muscle weakness, loss of muscle coordination (ataxia) and other problems with movement, speech problems, and mental illness. These signs and symptoms vary widely among people with late-onset forms of Tay-Sachs disease.

For more information on Tay-Sachs disease, you can check out the NIH's page here:

http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0002390/

Thank you so much for your support and for contributing to such an importance cause!

 

 

DONATE

To This Fundraiser

$1,746

MONEY RAISED
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  • Larry Spiro

    $25

  • The Rubin family

    $250

  • Sarit and Boaz

    $50

  • Bonnie and Alvin Wilichinsky

    $25

  • Debbi, Allie, and Nicole Strauss

    $100

  • Larry and Gail

    $25

  • Deanna

    $25

  • The Baumgarten family

    $100

  • Josh Levitt

    $75

  • Linda & Ryan

    $50

  • Susan & Mark Spiro

    $150

  • Cindy and Rich Goldman

    $25

  • Anonymous

    $10

  • Cashey Haimm

    $30

  • Anonymous

    $25

  • Josh Lambert

    $25

  • Lois Kroplick and Bruce Levitt

    $100

  • Anonymous

    $50

  • Meryl and Jon Salmon

    $100

  • Alison and David Katz

    $100

  • Shirley Spiro

    $100

  • Carolyn Spiro

    $50

  • Deena and David Faleck

    $36

  • Abby G

    $25

  • Eve Shabto

    $25

  • Andy and Margaret Rubin

    $100

  • Scott and Mark

    $50

  • Emily Finger

    $20

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58% Raised of$3,000 Goal

Fundraise for this Campaign

The Team: $1,746 TOTAL RAISED SO FAR

JOIN THE TEAM

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Donor Comments

Emily Finger

Emily Finger

DONATION: $20

Good Luck Carolyn! 5 years ago

Scott and Mark

Scott and Mark

DONATION: $50

5 years ago

Andy and Margaret Rubin

Andy and Margaret Rubin

DONATION: $100

5 years ago

Eve Shabto

Eve Shabto

DONATION: $25

You're going to kill it, Spiro!!!! 5 years ago

Abby G

Abby G

DONATION: $25

5 years ago

Deena and David Faleck

Deena and David Faleck

DONATION: $36

5 years ago

Carolyn Spiro

Carolyn Spiro

DONATION: $50

5 years ago

Shirley Spiro

Shirley Spiro

DONATION: $100

5 years ago

Alison and David Katz

Alison and David Katz

DONATION: $100

5 years ago

Meryl and Jon Salmon

Meryl and Jon Salmon

DONATION: $100

Lots of good luck! 5 years ago