Hi, my name is Jaimie and I am an active and energetic 7 year-old girl. I spent most of my first 6 months of life in hospitals. That time of my life and the prolonged hospitalizations required my parents to be away from home and work, and intense home medical regimens were needed (when I was home), creating a source of constant worry. I was diagnosed with Congenital Hyperinsulinism (HI) and flew to the Philadelphia Children’s Hospital when I was 4 months old. HI is a disease causing dangerously low blood sugar levels (hypoglycemia) due to the overproduction of insulin. Every year HI babies suffer permanent brain damage or death, and other challenges, due to the effects of low blood sugars. With the diagnosis of KATP channel HI, I had 40% of my pancreas removed with a special technique (pancreatic head resection) called a Roux-en-Y. I had complications and ended up having a second surgery. With this specialized procedure, I required a team of endocrinologists, radiologist, pathologist and surgeons. With the focal lesion removed, I was pronounced cured from HI. My parents are still concerned about my future health uncertainties. We are so grateful to the wonderful team at CHOP…they saved my life! The funds I raise will be added to the CHI Research Fund for studies designed to improve the diagnosis, therapy, research, and quality of life for those affected by HI. This is a great time to donate since the first $50,000 that is raised is matched by the University of Pennsylvania. HI is often overlooked, misdiagnosed, and mistreated; due to a lack of awareness of this rare disease…let’s help to change that!
The Million Dollar Bike Ride is on May 7th, in Philadelphia. I will complete my ride either on May 6, 7, or 8 (depends on the weather). The deadline to contribute is on May 21st, 2016.