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Emi Legano's Fundraiser:

Raring to Go for CHI - Team ZOE

Emi's Photo
Emi's Photo
Emi Legano

THE STORY:

This race is to raise funds and awareness for Congenital Hyperinsulinism. What is CHI? It's when the pancreas continuously generates too much insulin due to a genetic mutation. New mutations are being found all the time, but treatment options are not growing as quickly. As Dr. De Leon said "We need more tools in our toolbox." Please help us build our toolbox!! Our daughter Zoe was born 6.5 weeks early. When in the NICU the Doctors discovered her sugars were low and not rising. She also developed Pulmonary Hypertension and was intubated. Thankfully she fought hard and within 2 months the tube was removed. Zoe stayed in the NICU and PCN for another month learning how to take a bottle. This also gave doctors the time to diagnose and start treating her CHI. This was the first case of CHI the hospital had ever seen! After almost 3 months she came home on my birthday. Due to feeding complications attributed to CHI she was admitted to Hospital Pediatrics to further work on her ability to drink her bottles in a safe environment. Zoe now has a team of doctors, her Pediatrician, Pediatric Developmental Follow-Up, Pediatric Endocrinologist, Pediatric Cardiologist, and Pediatric Dietician see her currently. Due to even other complications with her CHI we have also worked with amazing doctors in GI, Optometry, Dermatology, and Oncology. Zoe works weekly with a Occupational Therapist and a Speech Therapist who are focusing on eating, drinking, and speaking. Everyday is new. We monitor her blood sugars at least 5 times a day and throughout the night ensuring that she will not have a hypoglycemic episode that could lead to a seizure, brain damage, or death. Since She is now 2 we are asking the question "Which came first, the low blood sugar or the temper tantrum?" And we always check. We have to check. A developmentally appropriate temper tantrum could be a sign that she is slipping again. Not only is CHI rare, but Zoe's mutations are also extremely rare. Her mutations should not be responding to medicine or food, but we are extremely thankful that for the moment she is. Developing new tools for CHI could mean that in the future Zoe will not have to have her pancreas partially removed and then later develop Type 1 Diabetes. It could also mean she gets to do things that other children do everyday without stopping every 30 minutes to check blood sugar levels! It gives us HOPE. Please help our Sugar Babies!

DONATE

To This Fundraiser

$2,557

MONEY RAISED
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  • Mary and Eddie Padow, Grandparents

    $25

  • Ruby Benkendorf

    $36

  • Channa Mayer

    $25

  • Danielle Heisler

    $25

  • Erle "Jay" Zoll

    $25

  • Michael, Megan, and Jack Padow

    $50

  • Jill ( Sherman) Cakert and Buck Cakert

    $25

  • Dean and Debbie Hoffman

    $15

  • Carrie Deane

    $25

  • Tad

    $50

  • John Lopez

    $25

  • Dana Pesarchick-Craft

    $25

  • Scott k

    $25

  • Anton

    $25

  • Eric Hoyt

    $20

  • Grayson Wallace

    $25

  • David Jaycox

    $20

  • Chacho and Aunt Judy

    $25

  • Alex DiMattesa

    $25

  • Cathy & Nelson Hoyt

    $25

  • Marcus C

    $25

  • Chris Bolt

    $40

  • Arleen Kates

    $25

  • The McCreary Family

    $100

  • Ricky Sims

    $100

  • Jeff

    $50

  • Lois and Sidney Padow

    $25

  • Gary Decker

    $50

  • Flz

    $25

  • Suellen Gregory

    $250

  • Andrew Spruill

    $50

  • Shore style 73

    $100

  • Collin Ackerman

    $25

  • Porter

    $50

  • Jess Jess

    $25

  • Kara Constantino

    $25

  • Sarah Cary

     

  • Dj values

     

  • John Heulitt

    $25

  • Blue Crump

     

  • Lizzie Cox

    $100

  • Ronie Singh

    $25

  • Carla & Marc Jacobs

    $50

  • Aggie Cullen

    $100

  • Todd Olsen

    $25

  • Dennis McDonald

    $25

  • Reid M

    $50

  • Ryan Hudon

    $25

  • The Benders

    $36

  • Gitya Akkerman

    $25

  • Todd Breland

    $25

  • GiGi Legano

    $15

  • Sondy Padow

    $25

  • Anonymous

    $100

  • Yael

    $50

  • Lauren Bell

    $25

  • Leslie Baron

    $25

  • Marla and Ned Hood

    $50

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Fundraise for this Campaign

The Team: $2,557 TOTAL RAISED SO FAR

JOIN THE TEAM

Want to help Fundraise or Volunteer for this amazing Fundraiser? Join the Team

Donor Comments

Marla and Ned Hood

Marla and Ned Hood

DONATION: $50

Happy to be cheering on Team ZOE! 1 year ago

Leslie Baron

Leslie Baron

DONATION: $25

1 year ago

Lauren Bell

Lauren Bell

DONATION: $25

1 year ago

Yael

Yael

DONATION: $50

1 year ago

Anonymous

ANONYMOUS

DONATION: $100

1 year ago

Sondy Padow

Sondy Padow

DONATION: $25

1 year ago

GiGi Legano

GiGi Legano

DONATION: $15

1 year ago

Todd Breland

Todd Breland

DONATION: $25

1 year ago

Gitya Akkerman

Gitya Akkerman

DONATION: $25

I hope you can get some answers 1 year ago

The Benders

The Benders

DONATION: $36

1 year ago