This race is to raise funds and awareness for Congenital Hyperinsulinism. What is CHI? It's when the pancreas continuously generates too much insulin due to a genetic mutation. New mutations are being found all the time, but treatment options are not growing as quickly. As Dr. De Leon said "We need more tools in our toolbox." Please help us build our toolbox!! Our daughter Zoe was born 6.5 weeks early. When in the NICU the Doctors discovered her sugars were low and not rising. She also developed Pulmonary Hypertension and was intubated. Thankfully she fought hard and within 2 months the tube was removed. Zoe stayed in the NICU and PCN for another month learning how to take a bottle. This also gave doctors the time to diagnose and start treating her CHI. This was the first case of CHI the hospital had ever seen! After almost 3 months she came home on my birthday. Due to feeding complications attributed to CHI she was admitted to Hospital Pediatrics to further work on her ability to drink her bottles in a safe environment. Zoe now has a team of doctors, her Pediatrician, Pediatric Developmental Follow-Up, Pediatric Endocrinologist, Pediatric Cardiologist, and Pediatric Dietician see her currently. Due to even other complications with her CHI we have also worked with amazing doctors in GI, Optometry, Dermatology, and Oncology. Zoe works weekly with a Occupational Therapist and a Speech Therapist who are focusing on eating, drinking, and speaking. Everyday is new. We monitor her blood sugars at least 5 times a day and throughout the night ensuring that she will not have a hypoglycemic episode that could lead to a seizure, brain damage, or death. Since She is now 2 we are asking the question "Which came first, the low blood sugar or the temper tantrum?" And we always check. We have to check. A developmentally appropriate temper tantrum could be a sign that she is slipping again. Not only is CHI rare, but Zoe's mutations are also extremely rare. Her mutations should not be responding to medicine or food, but we are extremely thankful that for the moment she is. Developing new tools for CHI could mean that in the future Zoe will not have to have her pancreas partially removed and then later develop Type 1 Diabetes. It could also mean she gets to do things that other children do everyday without stopping every 30 minutes to check blood sugar levels! It gives us HOPE. Please help our Sugar Babies!