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Julie Sheldon's Fundraiser:

Raring to go for CHI- Team Crosby

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Julie Sheldon

THE STORY:

Crosby has Congenital Hyperinsulinism, a condition so rare that it's known as an "orphan disease." Crosby is featured on the University of Pennsylvania's Orphan Disease Center's webpage. http://www.med.upenn.edu/orphandisease/

Orphan diseases such as Hyperinsulinism rely on private fundraising for research. All funds that we raise through May 21, 2016 will be matched by UPenn. Please help us reach our goal!

There are currently few treatment options for Hyperinsulinism, and the medication that Crosby relies on every day is currently in limited supply. For the last two months, we have struggled to obtain his essential, life saving medication (which he receives via injection three times per day) as many pharmacies have, incredibly, simply run out of it.

Those of you who know Crosby know that although he requires a lot of specialized care, overall, he's doing great. That's due to the fact that despite the rarity of his condition, previous fundraising resulted in the development of a prenatal genetic test which we were lucky enough to have obtained. Crosby was born with no detectable sugar in his blood. If the doctors had not been standing by ready to treat him, the lack of sugar could have caused seizures and irreversible brain damage. Unfortunately, the genetic test we received is not commonly administered and detects only one of many forms/causes of Hyperinsulinism. This community of brave parents and children really needs our help! Thank you!

DONATE

To This Fundraiser

$1,361

MONEY RAISED
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  • Sophia Greenberg

    $50

  • Kelts Family

    $50

  • Jennifer Roldan Reich

    $100

  • Ira Rogers

    $50

  • Meredith Moriarty

    $25

  • The Schreiters

    $50

  • Anonymous

    $100

  • Sharon Minick

     

  • Mike stempa

    $100

  • Julie and Leighton Sheldon

    $100

  • The Schlosser Family

    $100

  • Erica and Scott Greenwald

    $50

  • Allison & John Harris

     

  • The Minick Family

     

  • Rob and Marlena Fass

    $100

  • Susan Graziano

    $25

  • Amy

    $25

  • Talia and Al

    $50

  • The Graziano's

     

  • Iris and Ron Mednick

    $50

  • Sue & Dylan Roberts

    $50

  • Gerry

    $36

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14% Raised of $10,000 Goal

Fundraise for this Campaign

The Team: $1,361 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Julie Sheldon

Amount Raised

$1,261

 

13% Raised of $10,000 Goal

Fundraiser Title

Jennifer Roldan Reich

Amount Raised

$100

Donor Comments

Gerry

Gerry

DONATION: $36

4 months ago

Sue & Dylan Roberts

Sue & Dylan Roberts

DONATION: $50

2 years ago

Iris and Ron Mednick

Iris and Ron Mednick

DONATION: $50

2 years ago

The Graziano's

The Graziano's

2 years ago

Talia and Al

Talia and Al

DONATION: $50

2 years ago

Amy

Amy

DONATION: $25

2 years ago

Susan Graziano

Susan Graziano

DONATION: $25

2 years ago

Rob and Marlena Fass

Rob and Marlena Fass

DONATION: $100

Crosby Alexander Sheldon 2 years ago

The Minick Family

The Minick Family

We love you Crosby! 2 years ago

Allison & John Harris

Allison & John Harris

We love you!! 2 years ago