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Raylene Seyb

Organized by: Stacy Boutot

Stacy's Photo
Stacy's Photo

THE STORY:

​Rayleene Seyb, originally from Connecticut, moved to Maine with her then fiancé John, in 1999. Currently Rayleene and John reside in Minot with their daughter, Madeline. As a family they have had to face many trials and tribulations. In November 2009, Rayleene and John found out they were going to be welcoming their first child into the world. In the beginning Rayleene was experiencing what you would consider a ‘normal’ pregnancy. At 5 months pregnant Rayleene was experiencing extreme headaches and was admitted to the hospital with strict orders to be on bed rest, she was diagnosed with pre-eclampsia. The next month, was a tough month, undergoing many tests and restless nights. On April 28, 2010 at 10:34 a.m, Madeline Edith Seyb was welcomed into the world via C-section weighing a small but tough 1lb 2 oz. Madeline would spend the next 5 months in the NICU at Maine Medical Center, in Portland. Rayleene and John were very dedicated to being part of Madeline’s every waking moment that she spent in the NICU even if it required them to travel the forty-five minutes each way or even spending nights in the local Ronald McDonald house. Between all the struggles they were enduring at this time – they continued to stay positive sharing laughs and hugs with their friends and family that always were at their side. After a 5 month stint in the NICU Madeline was able to come home at 5 lbs. with the assistance of oxygen. Madeline is now 5 years old, almost 6 and is definitely giving her parents a run for their money with her witty remarks and sassy attitude. ​Thinking that they could wipe the sweat from their brow and were in the clear in December 2014, Rayleene began to experience pain in her right thigh. After undergoing many tests, she was diagnosed with a rare form of cancer. This form of cancer is known as poorly differentiated synovial sarcoma, which is an aggressive form of cancer that only affects a small amount of people a year. Not knowing much about this type of cancer the Doctors in Maine requested Rayleene see a specialist in Boston at Mass General. This required many trips at wee hours of the morning on the train. Because of the time and how debilitating radiation, chemo and surgery would be Rayleene had no other choice but to leave her job. ​Starting in February, Rayleene was able to travel back and forth to Auburn for her daily radiation treatments. When it came time for chemotherapy Rayleene would spend days in the hospital receiving around the clock chemotherapy. Once the Doctors felt the tumor had shrunk it was time for surgery. Memorial day weekend 2015, Rayleene was prepped for a major surgery where they were able to remove the tumor and all margins were deemed clear. ​After a month of recovery, Rayleene hit another speed bump on her road to recovery. After spending time with her family on July 4th she spiked a high fever and began to experience drainage out of her surgical sight. Rayleene was then admitted to the hospital in Auburn, and then transferred via ambulance to Mass General where she would spend the next two weeks bed ridden after a surgical procedure to clean out the sight and a wound vac was placed. ​After a tough two weeks Rayleene was able to go home. Routine tests were preformed and it was found that the cancer had metastasized to the lungs. This would require more chemo and another surgical procedure. Rayleene was to begin her next round of chemo in Auburn. After two days of which would be routine chemo for Rayleene, her sodium levels dropped, and she had a seizure. The hospital, baffled by this, induced a coma so they would be able to bring her sodium levels back up. For whatever reason, Rayleene spent more time in this coma then expected. After long discussion, Rayleene was not to have anymore chemo, but go right into removal of the cancerous lesions on her lung in October 2015 at Mass General. ​For the next three months Rayleene would be able to spend a girls weekend with her mother, aunt and sister in North Conway. And travel to Connecticut with John and Madeline, to be with family for both Thanksgiving and Christmas. Also, ringing in the New Year with some of her closest friends. These happy times, seemed few and far between but, was the medicine she needed. ​Once February 2016 came it was time for more routine tests to make sure the cancer had not returned. Test number one returned and her leg was clear. Test number two returned and there were two small lesions that appeared on her lung. This required another trip to Boston. Currently Rayleene is undergoing a trial drug, the first one to be part of this study at Mass General. She is required to return to Boston every two weeks to be monitored. Fingers crossed, this drug will work and shrink the lesions on her lungs so she can undergo her next surgical procedure. ​Despite the struggle Rayleene, John and Madeline face they have remained extremely positive through this all. Like all of us they do experience stress and some days are tougher then others. Rayleene is still unable to work and John works extra to try to make ends meet as the medical bills continue to pour in. They have been fortunate to have family and friends who help watch Madeline and give them what they can. Hopefully, as a community we can come together to help support Rayleene and her family through this difficult time. I am hoping you will find it in your heart to help this family out

$530

 

11% Raised of $5,000 Goal

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  • Gabrielle Hutchins

    $25

  • Kenneys

    $25

  • For Punkaseed

    $100

  • Anonymous

     

  • Anonymous

     

  • Lorna

    $100

  • Cailin

    $25

  • Karrie

    $100

  • Megan EldridgeWroldson and Family

     

  • Myrtle Chase

    $10

  • Lauren LaRico (Upright)

    $50

  • Brittany lee

    $20

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Organized by

Stacy Boutot

This is a direct to organizer fundraiser.

Donor Comments

Brittany lee

Brittany lee

DONATION: $20

My thoughts, prayers and warm wishes are with you!! 2 years ago

Lauren LaRico (Upright)

Lauren LaRico (Upright)

DONATION: $50

I haven't seen you since we were teenagers, but working as an oncology nurse has revealed to me what a beast this disease is, and how incredible the people are that endure it. Hugs to you and your family. 2 years ago

Myrtle Chase

Myrtle Chase

DONATION: $10

2 years ago

Megan EldridgeWroldson and Family

Megan EldridgeWroldson and Family

2 years ago

Karrie

Karrie

DONATION: $100

Hey Ray! You amaze me as you continue to fight the good fight with love and positivity! We're rooting for you. 2 years ago

Cailin

Cailin

DONATION: $25

2 years ago

Lorna

Lorna

DONATION: $100

You,John and the little one are in my prayers. 2 years ago

Anonymous

ANONYMOUS

2 years ago

Anonymous

ANONYMOUS

2 years ago

For Punkaseed

For Punkaseed

DONATION: $100

In memory of Donna Burns 2 years ago

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