Skip to content
jenniferboyea's profile image - click for profile

Jennifer Boyea's Fundraiser:

Reagan's Warriors

Jennifer's Photo

BENEFITING: GETTY OWL FOUNDATION

Jennifer Boyea

THE STORY:

The Getty Foundation has been incredibly supportive in helping my family deal with the recent devastating diagnosis of my goddaughter, Reagan Sinkiewicz, SMA-Type 1. In honor of Reagan, I have created this website to raise money for the Getty Foundation. Each race my family participates in we will work together to raise awareness and money for research with the hope that someday a cure will be found for all of these beautiful children.

Our first race will be this November 29, 2013: The Nitro Turkey Thanksgiving Day 10K. http://www.brazenracing.com/nitroturkey.html



There is currently no treatment or cure for SMA, the #1 genetic killer of young children, but THERE IS HOPE! The National Institute of health has declared SMA the disease closest to treatment of more than 600 neurological disorders.

SMA Statistics:

1 in 6,000 births are to an SMA child

1 in 40 are carriers of SMA

A simple blood test can indicate if you are a carrier

All money raised will be benefiting the gene therapy program through Dr. Kaspar at Nationwide Children's Hospital in Columbus, Ohio. GETTY OWL FOUNDATION believes in the program. We believe there is hope!

Team Getty Runners/Walkers was formed by Morgan Saunders, a director of GETTY OWL FOUNDATION to help find a cure.

- See more at: http://www.crowdrise.com/teamgettyrunnerssma/fundraiser/jenniferboyea#sthash.15xSGBfs.dpuf

The Team: $0 TOTAL RAISED SO FAR

JOIN THE TEAM

Want to help Fundraise or Volunteer for this amazing Fundraiser? Join the Team

Donor Comments

Be the first to Donate to Jennifer and Reagan's Warriors.