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Rebecca Meiers-De Pastino's Fundraiser:

Rebecca Meiers-De Pastino - LoveLiv Cycle

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BENEFITING: A FOUNDATION BUILDING STRENGTH INC

EVENT: LoveLiv Cycle

EVENT DATE: Mar 13, 2016

Rebecca Meiers-De Pastino

THE STORY:

Please support me as I ride on March 13 to raise money to fund ground breaking gene therapy research to treat or cure Nemaline Myopathy, a rare dystrophy that afflicts my dear friend Sharon’s daughter, Liv, age 4. Please know that your donation will make a real difference.  Great strides have been made in gene therapy and a cure is possible.  

Research could end the profound muscle weakness suffered by Liv, and the thousands of children like her, who cannot walk, eat, or breathe on their own.  Liv is 4 and still cannot walk or crawl and relies on a feeding tube for some of her nutrition.  Her life expectancy is greatly reduced due to respiratory complications caused by her inability to clear her own airway by coughing, causing her to aspirate food, drinks, and even her own fluids. 

To learn more about Liv, go to loveliv.org. 

No donation is too small.  I mean it. 

The money will go to A Foundation Building Strength, a 501(c)3 charitable organization.  Donations are tax deductible.  Thank you in advance for your support.

 

DONATE

To This Fundraiser

$625

MONEY RAISED
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  • Nicole Jones

    $100

  • Tenny/Chris

    $25

  • Kerry Roberts

    $100

  • Anonymous

    $50

  • Barbara Meiers

    $250

  • Marvin & Linda Lotz

    $100

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31% Raised of$2,000 Goal

Donor Comments

Marvin & Linda Lotz

Marvin & Linda Lotz

DONATION: $100

3 years ago

Barbara Meiers

Barbara Meiers

DONATION: $250

3 years ago

Anonymous

ANONYMOUS

DONATION: $50

3 years ago

Kerry Roberts

Kerry Roberts

DONATION: $100

Go Rebecca! Go Liv!! 3 years ago

Tenny/Chris

Tenny/Chris

DONATION: $25

<3 3 years ago

Nicole Jones

Nicole Jones

DONATION: $100

3 years ago