Raena Maria Brendtro is remarkable. At age 13 she is an aspiring actress, singer, author and Stanford University student. She loves her siblings, her family, her friends, reading, writing, algebra, a fine cup of tea, Harry Potter, The Hunger Games, Taylor Swift, theater, singing and fruit. She has a unique balance of maturity well beyond her years, as well as the innocence of being a care-free kid.
One year ago, Raena's childhood was rocked with the diagnosis of a rare genetic disease, Friedreich's Ataxia. Since her diagnosis, she has had consults with medical specialists (neurology, cardiology, ophthamology, occupational therapy) to monitor her disease process and recommend guidance as her disease progresses. She has received outstanding care and compassion at every stop along the way. What the world of medicine can offer her in terms of evaluation and guidance, it can not currently provide one important thing; a cure.
By no means does Raena's diagnois of FA define who she is a person. She is still the same sweet, smart, caring, talented, selfless person we all love dearly. She steals the hearts of everyone she knows. I have the honor of calling Raena my niece. I have also accepted the honor of running the TCS New York City Marathon on behalf of the Friedreich's Ataxia Research Alliance (FARA). FARA is a non-profit organization dedicated to curing FA through research. FA is a, life-shortening, degenerative neuro-muscular disorder that affects 10,000 to 20,000 worldwide. Team FARA is made up of people who participate in endurance events on behalf of FARA.
November 2, 2014 Team FARA will participate in the TCS New York City Marathon.
There is currently no treatment or cure for FA, but FARA is working to change that. Thanks to fundraisers like this, FARA funds basic research, drug development, clinical trials, and scientific conferences to provide hope for a cure. For more information please visit their website curefa.org.
Thank you for taking the time to learn more about this worthy cause. If you are able, please consider making a donation to FARA and help find a CURE for Raena and the others fighting this disease. Thank you.
CR Impact Points
Click the VOTE button to give Michael 100 CrowdRise Impact Points (CIPs). Vote for the Volunteers and Fundraisers that are answering the call to service, raising money for charity, and making an impact for their causes. Come back and Vote every months. CIPs can earn you the highly coveted, highly respected CrowdRise Royalty Status.
CR Impact Points
If you're seeing the grey VOTE button, you should feel great about yourself. It means you already voted for Michael this month. Come back next month and vote again if you still love Michael. Thanks to your vote, Michael earned 100 CrowdRise Impact Points (CIPs). CIPs can earn you the highly coveted, highly respected CrowdRise Royalty Status.